Evidence map›Paper›PMID 33148733›Full record

ArticleBMJ open2020

Are you really doing 'codesign'? Critical reflections when working with vulnerable populations.

Sandra Moll, Michelle Wyndham-West, Gillian Mulvale, Sean Park, Alexis Buettgen, Michelle Phoenix, Robert Fleisig, Emma Bruce

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06373588 (Co-design and Evaluation of a Patient Navigator Intervention for Migrant Children and Youth with Special Healthcare Needs), which is not on this map. Cited by 142 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
142citing papers in PubMed, 5 pooled it
24.3field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06373588 narecruitingnot on this mapstarted 2024, after this paper: background citation

Co-design and Evaluation of a Patient Navigator Intervention for Migrant Children and Youth with Special Healthcare Needs (CYSHCN) Experiencing Care Transitions (MiNav Trial)

TypeinterventionalSponsorMcGill University Health Centre/Research Institute of the McGill University Health CentreRan2024 to 2027Enrolled324ConditionsPatient NavigationArmsPatient Navigator
3 · Its place in the literature

Who cites it

142 citing papers in PubMed, 5 syntheses or guidelines pooled it, 256 citations in OpenAlex.

  1. Pooled it
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  3. Codesign of Mental Health Interventions With Young People From Racially Minoritised Populations: A Systematic Review of Methods and Outcomes.Health expectations : an international journal of public participation in health care and health policy · 2025
    Pooled it
  4. Pooled it
  5. Co-design development of a decision guide on eating and drinking for people with severe dementia during acute hospital admissions.Health expectations : an international journal of public participation in health care and health policy · 2023
    Pooled it
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  9. Navigating sleep apnea in Scandinavia - a journey of contrasts.International journal of qualitative studies on health and well-being · 2026
    Article
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82 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 1 country.

Sandra MollSchool of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada molls@mcmaster.ca.ORCID 0000-0002-1937-0103
Michelle Wyndham-WestFaculty of Design, OCAD University, Toronto, Ontario, Canada.
Gillian MulvaleDeGroote School of Business, McMaster University, Hamilton, Ontario, Canada.
Sean ParkDepartment of Medicine, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada.
Alexis BuettgenSchool of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
Michelle PhoenixSchool of Rehabilitation Science and CanChild, McMaster University Faculty of Health Sciences, Hamilton, Ontario, Canada.
Robert FleisigWalter G. Booth School of Engineering Practice and Technology, McMaster University Faculty of Engineering, Hamilton, Ontario, Canada.
Emma BruceSchool of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
McMaster University · CACanadian Centre on Disability Studies · CAOntario College of Art and Design · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

'Codesign' and associated terms such as 'coproduction' or 'patient engagement', are increasingly common in the health research literature, due to an increased emphasis on the importance of ensuring that research related to service/systems development is meaningful to end-users.  However, there continues to be a lack of clarity regarding the key principles and practices of codesign, and wide variation in the extent to which service users are meaningfully engaged in the process. These issues are particularly acute when end-users include populations who have significant health and healthcare disparities that are linked to a range of intersecting vulnerabilities (eg, poverty, language barriers, age, disability, minority status, stigmatised conditions).  The purpose of this paper is to prompt critical reflection on the nature of codesign research with vulnerable populations, including key issues to consider in the initial planning phases, the implementation process, and final outputs.  Risks and tensions will be identified in each phase of the process, followed by a tool to foster reflexivity in codesign processes to address these issues.

Indexed as

Persons with DisabilitiesVulnerable PopulationsHealthcare DisparitiesHumansPatient ParticipationPopulation Groupsorganisation of health servicesqualitative researchquality in health carestatistics & research methods

Identifiers

PMID33148733
PMCPMC7640510
OpenAlexW3094844007

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.