ArticleInternational journal of qualitative studies on health and well-being2020
Views on everyday life among adults with spina bifida: an exploration through photovoice.
Article in International journal of qualitative studies on health and well-being, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- The association of daily urinary and bowel incontinence with emotional functioning in young adults with spina bifida: an ecological momentary assessment study.Journal of rehabilitation medicine · 2026Article
- Article
- Changes and Needs Experienced by People Aging With Spina Bifida and Hydrocephalus.The Gerontologist · 2025Article
- Psychosocial needs and outcomes of adults with spina bifida: A scoping review, 1974-2023.Health care transitions · 2024Article
- An mHealth Intervention to Improve Guardians' Adherence to Children's Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project): Protocol for a Development and Feasibility Study.JMIR research protocols · 2023Article
- Photovoice Revisited: Dialogue and Action as Pivotal.Qualitative health research · 2022Article
- Adults with spina bifida: ambulatory performance and cognitive capacity in relation to muscle function.Spinal cord · 2022Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The aim of this study was to actively integrate expertise of persons living with spina bifida, to explore conditions embedded in their everyday life. This was important because young adults with spina bifida risk not being able to fully participate in the community on equal terms and in accordance with their own preferences. Photovoice, a community-based participatory research approach, was utilized to engage participants through dialogue and photography. An exhibition was created to share results with community and stakeholders. An overarching theme that characterized the experiences of the group was, "an adaptation for us, but it works for no one". Findings are presented as: "
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.