ArticleHealth expectations : an international journal of public participation in health care and health policy2020
Is it worth it?: The experiences of persons with multiple sclerosis as they access health care to manage their condition.
Article in Health expectations : an international journal of public participation in health care and health policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.
- The role of machine learning in developing non-magnetic resonance imaging based biomarkers for multiple sclerosis: a systematic review.BMC medical informatics and decision making · 2022Pooled it
- The effect of nurse practitioner (NP-led) care on health-related quality of life in people with multiple sclerosis - a randomized trial.BMC neurology · 2022Trial
- Health Literacy and Unmet Needs in Patients With Multiple Sclerosis: A Cross-Sectional Study.Journal of clinical nursing · 2026Article
- International Expert Opinion on Optimal Switching to Cladribine Tablets from Other High-Efficacy Disease-Modifying Therapies for Relapsing-Remitting Multiple Sclerosis: Opportunities and Challenges.Neurology and therapy · 2026Review
- Implementing a new clinical service - what's your elevator pitch?BMC health services research · 2025Article
- Patients' perspectives of epilepsy care by specialists and generalists: qualitative evidence synthesis.BJGP open · 2024Article
- 'There's Nothing Wrong With You; You Just Need to Lose Weight'-A Qualitative Exploration of Pelvic Floor Dysfunction Among Women With Multiple Sclerosis and Their Interaction in Seeking Pelvic Healthcare.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Conceptualization, use, and outcomes associated with compassion in the care of people with multiple sclerosis: a scoping review.Journal of neurology · 2023Article
- Good multiple sclerosis (MS) care and how to get there in Canada: Perspectives of Canadian healthcare providers working with persons with MS.Frontiers in neurology · 2023Article
- The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Experiences of healthcare for people living with multiple sclerosis and their healthcare professionals.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- 'They're getting a taste of our world': A qualitative study of people with multiple sclerosis' experiences of accessing health care during the COVID-19 pandemic in the Australian Capital Territory.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Relationships and Communication-the core components of person-centred care.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Is it worth it?: The experiences of persons with multiple sclerosis as they access health care to manage their condition.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Barriers to clinical follow-up visits in multiple sclerosis: A nationwide register-based study.Multiple sclerosis journal - experimental, translational and clinicalArticle
- Prioritizing the healthcare access concerns of Canadians with MS.Multiple sclerosis journal - experimental, translational and clinicalArticle
- Review
- Women's experiences of navigating chronic pain within the context of living with an episodic disability.Women's health (London, England)Article
- Accessibility to Telerehabilitation Services for People With Multiple Sclerosis: Analysis of Barriers and Limitations.International journal of MS careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople with multiple sclerosis (MS) require complex care throughout life. Canadians with MS are high users of health-care services, yet still report unmet health-care needs and low satisfaction with services received.
objectiveThis study aimed to investigate the health-care access experiences of Ontarians with MS as they manage their condition. DESIGN AND
participantsInterpretive description guided data collection and analysis. Forty-eight people living across seven communities participated. Thirty-eight participated in one of five focus groups; the remaining 10 participated in an individual semi-structured interview.
resultsParticipants described the experience of accessing care as a decisional process, guided by a form of cost-benefit analysis. The process determined whether seeking conventional health-care services 'is worth it'. Most participants felt that the energy and resources required to access the health-care system outweighed their expected outcomes, based on past experiences. Participants who did not see the benefit of care seeking turned to self-treatment, use of complementary and alternative services, and engaged in patterns of health-care avoidance until a crisis arose. DISCUSSION AND
conclusionFindings suggest that a renewed effort to promote patient-centred care and a biopsychosocial approach may improve the health-care access experiences of persons with MS and reduce service avoidance.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.