ArticleBMC medical ethics2020
Sharing whilst caring: solidarity and public trust in a data-driven healthcare system.
Article in BMC medical ethics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed.
- Towards best practice recommendations: Perspectives from Australian GPs to inform the use of general practice data for research - A modified Delphi study.The European journal of general practice · 2026Article
- Article
- Defining Patient and Public Involvement and Engagement Tasks in Health Data Research: A Consensus Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Health data sovereignty: pinpointing conceptual ambiguities.Frontiers in digital health · 2026Article
- Trust and Perceived Trustworthiness in Health-Related Data Sharing Among UK Adults: Cross-Sectional Survey.Journal of medical Internet research · 2025Article
- Patient data for commercial companies? An ethical framework for sharing patients' data with for-profit companies for research.Journal of medical ethics · 2025Article
- Public Awareness of and Attitudes Toward the Use of AI in Pathology Research and Practice: Mixed Methods Study.Journal of medical Internet research · 2025Article
- A scoping review of ethical aspects of public-private partnerships in digital health.NPJ digital medicine · 2025Article
- Building and Sustaining Public Trust in Health Data Sharing for Musculoskeletal Research: Semistructured Interview and Focus Group Study.Journal of medical Internet research · 2024Article
- Secondary Use of Health Data for Medical AI: A Cross-Regional Examination of Taiwan and the EU.Asian bioethics review · 2024Article
- Ethical and social implications of public-private partnerships in the context of genomic/big health data collection.European journal of human genetics : EJHG · 2024Article
- Ethical and social reflections on the proposed European Health Data Space.European journal of human genetics : EJHG · 2024Article
- In safe hands: child health data storage, linkage and consent for use.Health promotion international · 2023Article
- Data-driven sudden cardiac arrest research in Europe: Experts' perspectives on ethical challenges and governance strategies.Resuscitation plus · 2023Review
- Data-driven research and healthcare: public trust, data governance and the NHS.BMC medical ethics · 2023Review
- Data for sale: trust, confidence and sharing health data with commercial companies.Journal of medical ethics · 2023Article
- Trustworthy artificial intelligence and ethical design: public perceptions of trustworthiness of an AI-based decision-support tool in the context of intrapartum care.BMC medical ethics · 2023Article
- Old and new challenges regarding comparable and viable data sharing in population-scale genomic research.European journal of human genetics : EJHG · 2023Article
- Towards trust-based governance of health data research.Medicine, health care, and philosophy · 2023Article
- Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison.European journal of human genetics : EJHG · 2023Article
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
backgroundIn the UK, the solidaristic character of the NHS makes it one of the most trusted public institutions. In recent years, the introduction of data-driven technologies in healthcare has opened up the space for collaborations with private digital companies seeking access to patient data. However, these collaborations appear to challenge the public's trust in the. MAIN TEXT: In this paper we explore how the opening of the healthcare sector to private digital companies challenges the existing social contract and the NHS's solidaristic character, and impacts on public trust. We start by critically discussing different examples of partnerships between the NHS and private companies that collect and use data. We then analyse the relationship between trust and solidarity, and investigate how this relationship changes in the context of digital companies entering the healthcare system. Finally, we show ways for the NHS to maintain public trust by putting in place a solidarity grounded partnership model with companies seeking to access patient data. Such a model would need to serve collective interests through, for example, securing preferential access to goods and services, providing health benefits, and monitoring data access.
conclusionA solidarity grounded partnership model will help establish a social contract or licence that responds to the public's expectations and to principles of a solidaristic healthcare system.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.