ArticleJournal of autism and developmental disorders2021
Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders?
Article in Journal of autism and developmental disorders, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Family-centered nursing interventions on asthma control and caregiver management capacity in preschool children with asthma: a systematic review and meta-analysis.Frontiers in pediatrics · 2026Pooled it
- Exploring Family Quality of Life Among Saudi Families of Children with Autism Spectrum Disorder.Healthcare (Basel, Switzerland) · 2026Article
- Bridging Parenting Stress and Child Progress: Evaluating a Parent-Mediated Early Intervention for Autism.Journal of clinical psychology in medical settings · 2026Article
- Development and evaluation of an autism information pack for culturally and linguistically diverse families: a quality improvement initiative.BMJ paediatrics open · 2025Article
- Enhancing autism care through remote support: A family-centered approach.World journal of psychiatry · 2025Article
- Application of family-centered care in cardiac surgery: a scoping review.European journal of medical research · 2025Article
- National Profile of Caregivers' Perspectives on Autism Spectrum Disorder Screening and Care in Primary Health Care: The Need for Autism Medical Home.International journal of environmental research and public health · 2021Article
- Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team.Revista latino-americana de enfermagemArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents' perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.