ArticleCancer2021
Caregiver engagement practices in National Cancer Institute Clinical Oncology Research Program settings: Implications for research to advance the field.
Article in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- Multi-site feasibility of a web-based and telephone navigation intervention to connect lung cancer caregivers in community oncology settings with resources: Protocol for the WF-2301CD Caregiver Oncology Needs Evaluation Tool (CONNECT) trial.Contemporary clinical trials · 2026Article
- Considering the caregiver in early-phase clinical trials: a review of trial protocols and consent forms.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Review
- Engaging community oncology stakeholders to plan multisite cancer caregiving research (CONNECT WF-2300CD).JNCI cancer spectrum · 2026Article
- The caregiver clinical communication process model: advancing the model to support spousal cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Oncology Treatment in India: A Narrative Exploration of Patient Engagement and Care Strategies.Cureus · 2025Review
- Association among financial toxicity, depression and fear of cancer recurrence in young breast cancer patient-family caregiver dyads: an actor-partner interdependence mediation model.BMC psychiatry · 2025Article
- Feasibility and Acceptability of Collecting Passive Smartphone Data for Potential Use in Digital Phenotyping Among Family Caregivers and Patients With Advanced Cancer.JCO clinical cancer informatics · 2025Observational
- Recruitment of informal caregivers into community oncology research studies: results from the 2022 Landscape Assessment.The oncologist · 2024Article
- Breadth and Depth of Patient and Caregiver Supportive Services in Community Oncology (WF-1803CD).Psycho-oncology · 2024Article
- Top Ten Tips Palliative Care Clinicians Should Know About Caring for Family Caregivers.Journal of palliative medicine · 2024Article
- Defining Practice Capacity for Cancer Care Delivery to Adolescents and Young Adults in the Community Setting: 2022 Landscape Assessment Results.Journal of adolescent and young adult oncology · 2024Article
- Feasibility and acceptability of C-PRIME: A health promotion intervention for family caregivers of patients with colorectal cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Processes for identifying caregivers and screening for caregiver and patient distress in community oncology: results from WF-1803CD.Journal of the National Cancer Institute · 2024Article
- Availability of cancer survivorship support services across the National Cancer Institute Community Oncology Research Program network.JNCI cancer spectrum · 2024Article
- Developing a national implementation strategy to accelerate uptake of evidence-based family caregiver support in U.S. cancer centers.Psycho-oncology · 2024Article
- Patient-Caregiver Portal System in Palliative Oncology: Assessment of Usability and Perceived Benefit.JMIR human factors · 2023Article
- Availability of Family Caregiver Programs in US Cancer Centers.JAMA network open · 2023Article
- Centering patients with advanced cancer includes supporting their caregivers.Journal of the National Cancer Institute · 2023Article
- Palliative Care Clinicians' Perspectives of an Integrated Caregiver Patient-Portal System in Oncology.Cancer care research online · 2021Article
- Insights About Dyadic Cancer Survivorship Interventions for Black Women and Their Caregivers: A Rapid Qualitative Analysis of Collaborator Perspectives.Cancer control : journal of the Moffitt Cancer CenterArticle
Corrections and comments
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Authors and funding
16 authors.
Funding
Abstract
backgroundSupportive care interventions have demonstrated benefits for both informal and/or family cancer caregivers and their patients, but uptake generally is poor. To the authors' knowledge, little is known regarding the availability of supportive care services in community oncology practices, as well as engagement practices to connect caregivers with these services.
methodsQuestions from the National Cancer Institute Community Oncology Research Program (NCORP)'s 2017 Landscape Survey examined caregiver engagement practices (ie, caregiver identification, needs assessment, and supportive care service availability). Logistic regression was used to assess the relationship between the caregiver engagement outcomes and practice group characteristics.
resultsA total of 204 practice groups responded to each of the primary outcome questions. Only 40.2% of practice groups endorsed having a process with which to systematically identify and document caregivers, although approximately 76% were routinely using assessment tools to identify caregiver needs and approximately 63.7% had supportive care services available to caregivers. Caregiver identification was more common in sites affiliated with a critical access hospital (odds ratio [OR], 2.44; P = .013), and assessments were less common in safety-net practices (OR, 0.41; P = .013). Supportive care services were more commonly available in the Western region of the United States, in practices with inpatient services (OR, 2.96; P = .012), and in practices affiliated with a critical access hospital (OR, 3.31; P = .010).
conclusionsAlthough many practice groups provide supportive care services, fewer than one-half systematically identify and document informal cancer caregivers. Expanding fundamental engagement practices such as caregiver identification, assessment, and service provision will be critical to support recent calls to improve caregivers' well-being and skills to perform caregiving tasks.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.