ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
Family caregivers' support needs during allo-HSCT-a longitudinal study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed.
- A Pilot Study of the Cancer Distress Coach-Caregiver App: A Digital Intervention for Reducing PTSD Symptoms in HCT Caregivers.Psycho-oncology · 2025Trial
- Developing and Evaluating an Inpatient Caregiver Support Program: Feasibility, Acceptability, and Perceived Impact.Mayo Clinic proceedings. Innovations, quality & outcomes · 2026Article
- Psychometric validation of the Danish cancer caregiver roles and responsibilities scale.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- "Tough Things You're Going to Have to Go Through": Dyadic Interview Study Including the Perspectives and Needs of Patients and Their Caregivers Post-Hematopoietic Cell Transplant.Journal of participatory medicine · 2026Article
- Nurses' perspectives on caregiver engagement in hematopoietic stem cell transplantation: A qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Person-Centred Nursing in Allogeneic Stem Cell Transplantation Using a Conversation Tool: A Qualitative Study.Scandinavian journal of caring sciences · 2025Article
- Feasibility of a Person-Centred Nursing Model Targeting Patient and Family Caregiver Needs in Allogeneic Haematopoietic Stem Cell Transplantation.Healthcare (Basel, Switzerland) · 2025Article
- Preparedness, Uncertainty, and Distress Among Family Caregivers in the Care of Patients Undergoing Hematopoietic Stem Cell Transplantation.Oncology nursing forum · 2025Article
- Exploring motivations of peer supporters for caregivers of patients with hematological malignancies-a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Implementation and Evaluation of Peer Ambassador Support to Patients Newly Diagnosed With Hematological Cancer and Their Caregivers.Nursing research and practice · 2025Article
- A person-centred intervention remotely targeting family caregivers' support needs in the context of allogeneic hematopoietic stem cell transplantation-a feasibility study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- A Visual Case-Oriented Analysis of Stress-Related Symptoms in Caregivers of Allogeneic Bone Marrow Transplantation Recipients.Oncology nursing forum · 2022Article
- Reliability, validity and acceptability of the traditional Chinese version of the carer support needs assessment tool in Hong Kong palliative care settings.BMC palliative care · 2021Article
- Higher levels of unmet support needs in spouses are associated with poorer quality of life - a descriptive cross-sectional study in the context of palliative home care.BMC palliative care · 2021Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe study aimed to explore family caregivers' support needs prior to allo-HSCT, how these change over time and whether they are associated with demographic factors and caregiver outcome.
methodsThis longitudinal repeated measure study included 87 family caregivers of allo-HSCT recipients: 63% were partners, 74% women, 65% lived with the recipient, and their mean age was 54 years. They completed the 14-item Carer Support Needs Assessment Tool (CSNAT) and caregiver outcome measures (caregiver burden, anxiety, depression, preparedness for caregiving and general health) prior to allo-HSCT and 3, 6 and 16 weeks later.
resultsThe two top support needs prior to allo-HSCT were 'knowing what to expect in the future' (79%) and 'dealing with your own feelings' (70%). Several support needs were associated with younger age and not being a partner, while higher needs implied worse caregiver outcomes for at least one of the outcomes prior to transplantation. Most support needs remained the same at the last follow-up.
conclusionThe findings that high support needs are often associated with worse caregiver outcomes and most support needs do not diminish over time indicate that more attention should be placed on the situation of family caregivers.
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