ArticleThe Gerontologist2022
In It Together: A Qualitative Meta-Synthesis of Common and Unique Psychosocial Stressors and Adaptive Coping Strategies of Persons With Young-Onset Dementia and Their Caregivers.
Article in The Gerontologist, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 38 citations in OpenAlex.
- One of the Many Things That I've Learned on This Journey…: A Co-operative, Narrative Inquiry With Two Care Partners of Spouses With Young Onset Dementia.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- The distinct challenges of living with young-onset dementia.NPJ dementia · 2026Review
- Analysis of the Association Between Psychosocial Stressors and Depression Among Family Caregivers of Individuals With Young-Onset Dementia and Late-Onset Dementia: A Cross-Sectional Study.Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society · 2026Article
- "I'm his brain": A qualitative study of care partners supporting the inner strength of persons living with mild cognitive impairment.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Longitudinal qualitative assessment of meaningful symptoms and relevance of WATCH-PD digital measures for people with early Parkinson's.Journal of neurology · 2025Article
- Dementia Care Specialists' Perspectives of Diagnosis and Early Psychosocial Care: A Qualitative Analysis of Focus Groups in Two Large Academic Medical Centers.Journal of aging research · 2025Article
- Psychosocial burdens in early- versus late-onset dementia: analysis of discrimination, stress, and loneliness in the All of Us Research Program.Innovation in aging · 2025Article
- "Time to Be Young?" - A Qualitative Study Exploring the Impact of Attending a Course for Young Carers Who Have a Parent with Dementia.Patient related outcome measures · 2025Article
- The interactivity and independence of Recovery challenges and coping strategies for ICU survivors and their caregivers: a systematic review and Meta-synthesis.BMC nursing · 2024Article
- Living with a person with young onset dementia - spousal experience.International journal of qualitative studies on health and well-being · 2024Article
- Transitions: Living With Young-Onset Alzheimer's Disease: A Qualitative Interview Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Palliative Care Coordination Interventions for Caregivers of Community-Dwelling Individuals with Dementia: An Integrative Review.Nursing reports (Pavia, Italy) · 2024Review
- Post-diagnostic support for persons with young-onset dementia - a retrospective analysis based on data from the Swedish dementia registry SveDem.BMC health services research · 2024Article
- Advancing Methodological Rigor for Psychosocial Aspects of Neuropalliative Care Interventions.Journal of palliative care · 2024Article
- Connecting, learning, supporting: Caregivers' experiences of a stress and distress biopsychosocial group intervention.Dementia (London, England) · 2024Article
- Journey to Diagnosis of Young-Onset Dementia: A Qualitative Study of People with Young-Onset Dementia and their Family Caregivers in Australia.Dementia (London, England) · 2023Article
- Assistance Dogs for People with Younger (Early)-Onset Dementia: The Family Carer's Experience.Animals : an open access journal from MDPI · 2023Article
- Family Members' Experiences of Young-Onset Dementia: Becoming Responsible Yet Feeling Powerless.Journal of multidisciplinary healthcare · 2023Article
- Peer support through video meetings: Experiences of people with young onset dementia.Dementia (London, England) · 2023Article
- A race against time: couples' lived diagnostic journeys to young-onset dementia.Aging & mental health · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 1 institution in 1 country.
Funding
Abstract
BACKGROUND AND
objectivesThe common and unique psychosocial stressors and adaptive coping strategies of people with young-onset dementia (PWDs) and their caregivers (CGs) are poorly understood. This meta-synthesis used the stress and coping framework to integrate and organize qualitative data on the common and unique psychosocial stressors and adaptive coping strategies employed by PWDs and CGs after a diagnosis of young-onset dementia (YOD). RESEARCH DESIGN AND
methodsFive electronic databases were searched for qualitative articles from inception to January 2020. Qualitative data were extracted from included articles and synthesized across articles using taxonomic analysis.
resultsA total of 486 articles were obtained through the database and hand searches, and 322 articles were screened after the removal of duplicates. Sixty studies met eligibility criteria and are included in this meta-synthesis. Four themes emerged through meta-synthesis: (a) common psychosocial stressors experienced by both PWDs and CGs, (b) unique psychosocial stressors experienced by either PWDs or CGs, (c) common adaptive coping strategies employed by both PWDs and CGs, and (d) unique adaptive coping strategies employed by either PWDs or CGs. Within each meta-synthesis theme, subthemes pertaining to PWDs, CGs, and dyads (i.e., PWD and CG as a unit) emerged. DISCUSSION AND IMPLICATIONS: The majority of stressors and adaptive coping strategies of PWDs and CGs were common, supporting the use of dyadic frameworks to understand the YOD experience. Findings directly inform the development of resiliency skills interventions to promote adaptive coping in the face of a YOD diagnosis for both PWDs and CGs.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.