Evidence map›Paper›PMID 33122312›Full record

ArticleBMJ open2020

Improving the quality of person-centred healthcare from the patient perspective: development of person-centred quality indicators.

Maria-Jose Santana, Kimberly Manalili, Sandra Zelinsky, Susan Brien, Elizabeth Gibbons, Jenny King, Lori Frank, Sara Wallström, Paul Fairie, Kira Leeb and 2 more

Abstract read
In one paragraph

Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. PCPI-S SF: development and psychometric assessment of the Person-centred Practice Inventory Staff-Short Form.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2025
    Article
  8. A call for increased measurement of eating disorders and disordered eating in federal surveillance in Canada.Health promotion and chronic disease prevention in Canada : research, policy and practice · 2025
    Article
  9. Article
  10. Article
  11. Healthcare and social care professionals' experiences of respite care: a critical incident study.International journal of qualitative studies on health and well-being · 2024
    Article
  12. Article
  13. Article
  14. Article
  15. Review
  16. Article
  17. Article
  18. Codesigning person-centred quality indicators with diverse communities: A qualitative patient engagement study.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Maria-Jose SantanaCommunity Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada mjsantan@ucalgary.ca.ORCID 0000-0002-0202-5952
Kimberly ManaliliCommunity Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.
Sandra ZelinskyAlberta Strategy for Patient-oriented Research, Calgary, Alberta, Canada.
Susan BrienHealth Quality Ontario, Toronto, Ontario, Canada.
Elizabeth GibbonsOxford University, Oxford, Oxfordshire, UK.
Jenny KingPicker Institute Europe, Oxford, Oxfordshire, UK.
Lori FrankRAND Corporation, Arlington, Virginia, USA.
Sara WallströmCenter for Person Centered Care, Gothenburg, Sweden.ORCID 0000-0001-7579-4974
Paul FairieCommunity Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.
Kira LeebVictorian Agency for Health Information, Melbourne, Victoria, Australia.
Hude QuanCommunity Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.
Richard SawatzkyTrinity Western University School of Nursing, Langley, British Columbia, Canada.

Funding

Canadian Institutes for Health Research 201709PJTCanadian Institutes for Health Research 201810CGV
6 · The paper itself

Abstract

importanceInternational efforts are being made towards a person-centred care (PCC) model, but there are currently no standardised mechanisms to measure and monitor PCC at a healthcare system level. The use of metrics to measure PCC can help to drive the changes needed to improve the quality of healthcare that is person centred.

objectiveTo develop and validate person-centred care quality indicators (PC-QIs) measuring PCC at a healthcare system level through a synthesis of the evidence and a person-centred consensus approach to ensure the PC-QIs reflect what matters most to people in their care.

methodsExisting indicators were first identified through a scoping review of the literature and an international environmental scan. Focus group discussions with diverse patients and caregivers and interviews with clinicians and experts in quality improvement allowed us to identify gaps in current measurement of PCC and inform the development of new PC-QIs. A set of identified and newly developed PC-QIs were subsequently refined by Delphi consensus process using a modified RAND/UCLA Appropriateness Method. The international consensus panel consisted of patients, family members, community representatives, clinicians, researchers and healthcare quality experts.

resultsFrom an initial 39 unique evidence-based PC-QIs identified and developed, the consensus process yielded 26 final PC-QIs. These included 7 related to structure, 16 related to process, 2 related to outcome and 1 overall global PC-QI.

conclusionsThe final 26 evidence-based and person-informed PC-QIs can be used to measure and evaluate quality incorporating patient perspectives, empowering jurisdictions to monitor healthcare system performance and evaluate policy and practice related to PCC.

Indexed as

Delivery of Health CareQuality Indicators, Health CareDelphi TechniqueHealth FacilitiesHumansQuality ImprovementQuality of Health Carehealth policyorganisation of health servicesquality in health care

Identifiers

PMID33122312
PMCPMC7597468

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.