ArticleCanadian oncology nursing journal = Revue canadienne de nursing oncologique2020
Needs of caregivers of patients receiving in-home palliative and end-of-life care.
Article in Canadian oncology nursing journal = Revue canadienne de nursing oncologique, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
6 citing papers in PubMed, 17 citations in OpenAlex.
- Comparative effectiveness of verbal instruction versus video-based education (VIVid) among family caregivers for improving the quality of life in advanced head and neck cancer patients receiving palliative care in Eastern India: a randomized controlled trial.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Trial
- Family perceptions of the transition from hospital to home palliative care: a phenomenological study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Participants' Perceptions of Advantages and Drawbacks of "Drop-In" Versus "Closed-Group" Formats Related to Cancer Bereavement Program Delivery.Current oncology (Toronto, Ont.) · 2025Article
- Emotional and Spiritual Challenges of Informal Caregivers: The Need for Early Mobile Palliative Care Support.Nursing reports (Pavia, Italy) · 2025Article
- Spiritual care from the perspective of family caregivers and nurses in palliative care: a qualitative study.BMC palliative care · 2023Article
- Secondary Home-based Palliative Care: Impact on Quality of Life of Beneficiaries.Indian journal of palliative careArticle
Corrections and comments
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Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Home support for patients receiving in-home palliative and end-of-life care (PELC) is greatly dependent on the daily presence of caregivers and their involvement in care delivery. However, the needs of caregivers throughout the care trajectory of a loved one receiving in-home PELC are still relatively unknown. OBJECTIVES AND METHODOLOGY: This descriptive qualitative study focuses on the role of caregivers who have cared for a person receiving in-home PELC with the goal of describing their needs throughout the care trajectory. As part of this process, 20 caregivers took part in semi-directed interviews. RESULTS AND DISCUSSION: This study sheds light on the multiple needs of caregivers of loved ones receiving in-home PELC. These informational, emotional, and psychosocial needs show that caregivers experience changes in their relationship with their loved one. Spiritual needs were expressed through the meaning ascribed to the home support experience. And the practical needs expressed by participants highlight the importance of round-the-clock access to PELC services and the essential importance of nursing support.
conclusionThe needs of caregivers of loved ones receiving in-home PELC are not being met to a satisfactory degree. It is important to consider these needs in the care trajectory, alongside the needs of the patients themselves, in order to improve the support experience leading up to the bereavement period.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.