ArticleBJPsych open2020
Priority concerns for people with intellectual and developmental disabilities during the COVID-19 pandemic.
Article in BJPsych open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06238089 (A Novel Way to Understand and Communicate the Burden of Antipsychotic Prescribing for Adults Across Specialist Intellectual Disability Services in England and Wales.), which is not on this map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Novel Way to Understand and Communicate the Burden of Antipsychotic Prescribing for Adults Across Specialist Intellectual Disability Services in England and Wales.
Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it, 61 citations in OpenAlex.
- Contextual determinants associated with children's and adolescents' mental health care utilization: a systematic review.European child & adolescent psychiatry · 2024Pooled it
- People with intellectual disabilities living in care facilities engaging in virtual social contact: A systematic review of the feasibility and effects on well-being.Journal of applied research in intellectual disabilities : JARID · 2022Pooled it
- Ethical dimensions in nursing care for individuals with intellectual disabilities.Nursing ethics · 2026Review
- Viruses and psychiatric disorders: We have not crossed the borderline from hypothesis to proof yet (Review).Molecular medicine reports · 2025Review
- A novel way to understand and communicate the burden of AntiPsycHotic prescribing for adults across specialist Intellectual Disability services in England and Wales: the APHID feasibility study protocol.Frontiers in health services · 2025Article
- Hybrid Service Delivery for voluntary, community and social enterprise organisations working with adults with learning disabilities and/or autism: a realist review protocol.Systematic reviews · 2024Article
- Pre-pandemic Executive Function Protects Against Pandemic Anxiety in Children with and Without Autism Spectrum Disorder.Journal of autism and developmental disorders · 2024Article
- Article
- Children and young people's reported contact with professional services for mental health concerns: a secondary data analysis.European child & adolescent psychiatry · 2024Article
- The Experiences of Autistic People When Facemask Wearing and Interacting with Masked Individuals.Autism in adulthood · 2024Article
- Hospitalisation and mortality among privately insured individuals with COVID-19 in the United States: The role of intellectual disabilities and Neurogenetic disorders.Journal of intellectual disability research : JIDR · 2024Article
- An Accessible Web-Based Survey to Monitor the Mental Health of People With Mild Intellectual Disability or Low Literacy Skills During the COVID-19 Pandemic: Comparative Data Analysis.JMIR public health and surveillance · 2024Article
- Acceptability of virtual psychiatric consultations for routine follow-ups post COVID-19 pandemic for people with intellectual disabilities: cross-sectional study.BJPsych open · 2024Article
- The impact of COVID-19 on mental health service utilisation in England.SSM. Mental health · 2023Article
- The long-term psycho-social impact of the pandemic on people with intellectual disability and their carers.The International journal of social psychiatry · 2023Article
- [A review of research on psychological and behavioral problems in children with autism spectrum disorder during the coronavirus disease 2019 epidemic].Zhongguo dang dai er ke za zhi = Chinese journal of contemporary pediatrics · 2023Review
- The experiences of students with intellectual and developmental disabilities, parents, and teachers regarding health self-advocacy program with school-home connection: a qualitative study.Frontiers in psychiatry · 2023Article
- Changes in community and hospital-based health care use during the COVID-19 pandemic for adults with and without intellectual and developmental disabilities.Journal of intellectual disability research : JIDR · 2022Article
- International clinician perspectives on pandemic-associated stress in supporting people with intellectual and developmental disabilities.BJPsych open · 2022Article
- The mental health and well-being of adults with intellectual disability during the COVID-19 pandemic: A narrative review.Journal of policy and practice in intellectual disabilities · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 7 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe approach taken to support individuals during the coronavirus disease 2019 (COVID-19) pandemic needs to take into account the requirements of people with intellectual disabilities and/or autism, who represent a major vulnerable group, with higher rates of co-occurring health conditions and a greater risk of dying prematurely. To date, little evidence on COVID-related concerns have been produced and no report has provided structured feedback from the point of view of people with intellectual disabilities and/or autism or of their family/carers.
aimsTo provide systemised evidence-based information of the priority concerns for people with intellectual disabilities and/or autism regarding the COVID-19 pandemic.
methodSenior representatives of major UK-based professional and service-user representative organisations with a stake in the care of people with intellectual disabilities and/or autism were contacted to provide a list of concerns across three domains: 'mental health and challenging behaviour', 'physical health and epilepsy' and 'social circumstances and support'. The feedback was developed into statements on frequently reported priorities. These statements were then rated independently by expert clinicians. A video-conference meeting to reconcile outliers and to generate a consensus statement list was held.
resultsThirty-two organisations were contacted, of which 26 (81%) replied. From the respondent's data, 30 draft consensus statements were generated. Following expert clinician review, there was initially strong consensus for seven statements (23%), increasing to 27 statements (90%) following video conferencing.
conclusionsThese recommendations highlight the expectations of people with intellectual disabilities and/or autism in the current pandemic. This could support policymakers and professionals' deliver and evidence person-centred care.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.