Evidence map›Paper›PMID 33118395›Full record

ArticleThe journal of vascular access2021

The patient experience of hemodialysis vascular access decision-making.

Karen Woo, Huibrie Pieters

Registry-linked trialAbstract read
In one paragraph

Article in The journal of vascular access, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05654103 (Randomized Controlled Trial Comparing endoAVF Versus surgAVF), which is not on this map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05654103 naactive not recruitingnot on this mapstarted 2024, after this paper: background citation

Randomized Controlled Trial Comparing endoAVF Versus surgAVF

TypeinterventionalSponsorUniversity of California, Los AngelesRan2024 to 2027Enrolled90ConditionsEnd Stage Renal Disease on DialysisArmsendoAVF, surgAVF
3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Karen WooDepartment of Surgery, Division of Vascular Surgery and Endovascular Therapy, David Geffen School of Medicine, University of California Los Angeles, Los Angeles, CA, USA.ORCID https://orcid.org/0000-0002-6148-9757
Huibrie PietersSchool of Nursing, University of California Los Angeles, Los Angeles, CA, USA.

Funding

Outcomes of Vascular Dialysis Access in the ElderlyK08DK107934 · NIDDK · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI WOO, KAREN · 2016 to 2020
$847k
NIDDK NIH HHS K08 DK107934
6 · The paper itself

Abstract

backgroundTo describe vascular access (VA)-related decision-making from the patient perspective, in patients who have already chosen hemodialysis as their renal replacement modality, and identify areas where physicians can improve this experience.

methodsIn-person, semi-structured interviews with 15 patients with end-stage kidney disease were systematically analyzed by two independent researchers using thematic analysis. Interviews were conducted until systematic analysis revealed no new themes.

resultsPatients had mean age 57 (range 22-85), with seven males and diverse racial/ethnic/marital status. All (15/15) patients viewed VA as "intertwined and interrelated" with dialysis, prioritized the dialysis, described the VA merely as the "hookup" to life-preserving dialysis and gave it minimal consideration. Three themes were identified: consolidation of dialysis and VA, reliance on supportive advisors and communication with physicians. Although 14/15 patients described processes common to medical decision-making, including information seeking, learning from the experiences of others, and weighing risks and benefits, they did not apply these processes specifically to VA. While all participants took ownership of the VA decision, they lacked clear understanding about the different types of VA and their consequences. Most patients (14/15) depended on family and friends for reinforcement, motivation and advice. Patients all described physician characteristics they associated with trustworthiness, the most common being listening and explaining, demonstrating empathy and making an effort to meet the patient's individual needs. Perceived arrogance, unavailability and lack of expertise represented untrustworthiness. The majority (14/15) accepted VA recommendations from physicians they found trustworthy and authoritative.

conclusionsThe study participants were minimally engaged in VA decision-making. Educational aids and shared decision-making tools are needed to empower patients to make better-informed, self-efficacious VA decisions.

Indexed as

Kidney Failure, ChronicPhysiciansHumansMaleMiddle AgedPatient Outcome AssessmentRenal DialysisAV fistulacathetersdecision makingdialysisDialysis access

Identifiers

PMID33118395
PMCPMC8216296

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.