ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2021
Development and validation of a voice-of-the-patient measure of cognitive concerns experienced by people living with HIV.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- HIV-Specific Reported Outcome Measures: Systematic Review of Psychometric Properties.JMIR public health and surveillance · 2022Pooled it
- How do fatigue, cognitive dysfunction, activity and role functioning, and mental health inter-relate in adults with post-COVID-19 syndrome? A structural equation model analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Quantifying the Degree of Fatigue in People Reporting Symptoms of Post-COVID-19 Syndrome: Results from a Rasch Analysis.Physiotherapy Canada. Physiotherapie Canada · 2025Article
- A patient-centered view of symptoms, functional impact, and priorities in post-COVID-19 syndrome: cross-sectional results from the Québec Action Post-COVID cohort.BMC infectious diseases · 2025Article
- Measuring what matters to older persons for active living: part II cross-sectional validity evidence for OPAL measure across four countries.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Portrait of mental health identified by people with the post-covid syndrome.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Development of a self-report measure of cognitive change: assessment of interpretability in two samples, people with HIV and people without HIV.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Development of a Prototype for a Bilingual Patient-Reported Outcome Measure of the Important Health Aspects of Quality of Life in People Living with HIV: The Preference Based HIV Index (PB-HIV).Journal of personalized medicine · 2022Article
- Efficacy potential of Goal Management Training to improve cognitive function in older people living with HIV.Contemporary clinical trials communications · 2022Article
- Action for better brain health among people living with HIV: protocol for a randomized controlled trial.BMC infectious diseases · 2021Article
- Voice Quality in Individuals With Acquired Immunodeficiency Syndrome.International journal of language & communication disordersArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
purposePeople living with HIV may experience some degree of mild cognitive impairment. They are best placed to report on their cognitive symptoms, but no HIV-specific questionnaire exists to elicit these concerns. This study aimed to validate a set of items to form a measure
methods48 items were tested on an initial sample of 204 people with HIV. Rasch analysis was used to identify those that fit a hierarchical continuum. The hierarchy was validated on a new sample of 703 people with HIV and a sample of 484 people without HIV.
results18 items fit the model and formed the Communicating Cognitive Concerns Questionnaire (C3Q). The items spanned the full range of cognitive ability, distinguished between people working and not working, and correlated with other self-report outcomes such as mental health (0.56) and work productivity (0.60), although showed a low correlation with cognitive test performance.
conclusionThe C3Q is the first questionnaire specifically developed for use among people with HIV. While not strongly associated with cognitive test performance, it reflects real-life concerns of people and is associated with mood, work, and work productivity. It is a needed step in assessing cognition in this population.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.