Evidence map›Paper›PMID 33104029›Full record

ArticleJournal of Alzheimer's disease : JAD2020

Living Alone with Mild-To-Moderate Dementia: Findings from the IDEAL Cohort.

Linda Clare, Anthony Martyr, Catherine Henderson, Laura Gamble, Fiona E Matthews, Catherine Quinn, Sharon M Nelis, Jennifer Rusted, Jeanette Thom, Martin Knapp and 2 more

Abstract read
PubMed Publisher
In one paragraph

Article in Journal of Alzheimer's disease : JAD, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
29citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

29 citing papers in PubMed, 1 synthesis or guideline pooled it.

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  12. The clock-drawing test: reading temporalities of dementia from clinical chart notes.The journal of the Royal Anthropological Institute · 2025
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  16. Living Alone With Dementia: A Reality Check.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2024
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

12 authors.

Linda ClareREACH: The Centre for Research in Ageing and Cognitive Health, College of Medicine and Health, University of Exeter, St Luke's Campus, Exeter, UK.
Anthony MartyrREACH: The Centre for Research in Ageing and Cognitive Health, College of Medicine and Health, University of Exeter, St Luke's Campus, Exeter, UK.
Catherine HendersonPersonal Social Services Research Unit>, London School of Economics and Political Science, London, UK.
Laura GambleInstitute for Health and Society, Newcastle University, Newcastle, UK.
Fiona E MatthewsInstitute for Health and Society, Newcastle University, Newcastle, UK.
Catherine QuinnCentre for Applied Dementia Studies, University of Bradford, Bradford, UK.
Sharon M NelisREACH: The Centre for Research in Ageing and Cognitive Health, College of Medicine and Health, University of Exeter, St Luke's Campus, Exeter, UK.
Jennifer RustedSchool of Psychology, University of Sussex, Brighton, UK.
Jeanette ThomSchool of Medical Sciences, University of New South Wales, Sydney, Australia.
Martin KnappPersonal Social Services Research Unit>, London School of Economics and Political Science, London, UK.
Nicola HartResearch Development and Evaluation, Alzheimer's Society, London, UK.
Christina VictorCollege of Health and Life Sciences, Brunel University London, London, UK.

Funding

Department of Health
6 · The paper itself

Abstract

backgroundA significant proportion of people with dementia live alone, but little is known about their specific needs.

objectiveTo understand the profile of people living alone with mild-to-moderate dementia in the UK and identify any systematic differences associated with living situation.

methodsWe analyzed cross-sectional data from 1,541 people with mild-to-moderate dementia and 1,277 caregivers participating in the IDEAL cohort at the first wave of assessment.

resultsThere were 1,256 (81.5%) people with dementia living with others and 285 (18.5%) living alone, of whom 51 (3% of whole sample) reported little or no informal support. There were relatively few differences associated with living situation and odds ratios were generally small. People living alone were older on average, and more likely to be female, than those living with others. Those living alone were more likely to have higher cognitive ability and self-reported functional ability, and more social contact with those from other households. They were also lonelier, expressed less satisfaction with life, and used home care services and equipment more. There were no differences in symptoms, mood, quality of life, or well-being.

conclusionThe findings support the view that it is possible to 'live well' with mild-to-moderate dementia while living alone, given appropriate support, including home care and equipment. Nevertheless, it is important to consider how those living alone may be supported to have a more satisfactory experience, and how health and social care services can best respond to their needs.

Indexed as

Functional StatusIndependent LivingSocial SupportAgedAged, 80 and overAge FactorsCognitionCohort StudiesDementiaFemaleHome Care ServicesHumansLonelinessMaleNeeds AssessmentPersonal SatisfactionAids and adaptationsAlzheimer’s diseaseassets and resourcesservice usesocial capitalsvascular dementia

Identifiers

PMID33104029

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.