Evidence map›Paper›PMID 33084497›Full record

ArticlePalliative medicine2021

The palliative care needs and experiences of people with advanced head and neck cancer: A scoping review.

Catriona R Mayland, Qiaoling Marilyn Ho, Hannah C Doughty, Simon N Rogers, Prithvi Peddinti, Praytush Chada, Stephen Mason, Matthew Cooper, Paola Dey

Open access · hybridAbstract readScoping Review
PubMed Full text at PMC Publisher
In one paragraph

Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed, 3 pooled it
4.3field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 3 syntheses or guidelines pooled it, 54 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 3 institutions in 2 countries.

Catriona R MaylandDepartment of Oncology and Metabolism, University of Sheffield, Sheffield, UK.ORCID 0000-0002-1440-9953
Qiaoling Marilyn HoPalliative Care Institute, University of Liverpool, Liverpool, UK.
Hannah C DoughtyPalliative Care Institute, University of Liverpool, Liverpool, UK.
Simon N RogersFaculty of Health, Social Care and Medicine, Edge Hill University, Ormskirk, UK.
Prithvi PeddintiUniversity of Liverpool Medical School, Liverpool, UK.
Praytush ChadaUniversity of Liverpool Medical School, Liverpool, UK.
Stephen MasonPalliative Care Institute, University of Liverpool, Liverpool, UK.
Matthew CooperSheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.ORCID 0000-0003-0073-260X
Paola DeyFaculty of Health, Social Care and Medicine, Edge Hill University, Ormskirk, UK.
University of Liverpool · GBEdge Hill University · GBSheffield Teaching Hospitals NHS Foundation Trust · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe palliative care needs of people with advanced head and neck cancer pose unique complexities due to the impact the illness has on eating, speaking, appearance and breathing. Examining these needs would help provide guidance about developing relevant models of care and identify gaps in research knowledge.

aimTo identify and map out the palliative care needs and experiences for people with advanced head and neck cancer.

designA scoping literature review following the methods described by the Joanna Briggs Institute. DATA SOURCES: An electronic search of the literature was undertaken in MEDLINE (Ovid), EMBASE and CINAHL covering the years January 1996 to January 2019.

resultsPeople with advanced head and neck cancer often had palliative care needs but there was variability in the timing and access to relevant services. A high prevalence of interventions, for example hospital admissions were needed even during the last month of life. This was not necessarily negated with early engagement of palliative care. Dissonance between patients and family carers about information needs and decision-making was an additional complexity. Studies tended to be descriptive in nature, and often involved a single centre.

conclusionThis scoping review demonstrates the complexity of care for people with advanced head and neck cancer and the issues related to the current healthcare systems. Focus on appropriate referral criteria, increased integration and coordination of care and robust evaluation of specific care components seems key. Linkage between research and service design delivery across teams, disciplines and care settings seems pertinent.

Indexed as

Head and Neck NeoplasmsHospice and Palliative Care NursingDelivery of Health CareHumansPalliative CarePopulation Groupsend-of-lifeHead and neck cancerhealthcare servicespalliative carepalliative medicinereview

Identifiers

PMID33084497
PMCPMC7797618
OpenAlexW3089742592

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.