Evidence map›Paper›PMID 33072994›Full record

ArticleInternational journal of neonatal screening2019

Factors Influencing Parental Awareness about Newborn Screening.

Věra Franková, Alena Dohnalová, Karolína Pešková, Renata Hermánková, Riona O'Driscoll, Pavel Ješina, Viktor Kožich

Abstract read
In one paragraph

Article in International journal of neonatal screening, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Observational
  5. Article
  6. Evaluation of the Florida Newborn Screening Program Education Campaign.International journal of neonatal screening · 2025
    Article
  7. Article
  8. Review
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Informing Parents about Newborn Screening: A European Comparison Study.International journal of neonatal screening · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Věra FrankováDepartment of Pediatrics and Adolescent Medicine, Charles University First Faculty of Medicine and General University Hospital, Ke Karlovu 2, 128 04 Prague 2, Czech Republic; karolina.peskova@vfn.cz (K.P.); renata.hermankova@vfn.cz (R.H.); riona.od@gmail.com (R.O.); pavel.jesina@vfn.cz (P.J.).ORCID https://orcid.org/0000-0002-1927-9596
Alena DohnalováInstitute of Physiology, First Faculty of Medicine, Charles University, Albertov 5, 128 00 Prague 2, Czech Republic; alena.dohnalova@lf1.cuni.cz.
Karolína PeškováDepartment of Pediatrics and Adolescent Medicine, Charles University First Faculty of Medicine and General University Hospital, Ke Karlovu 2, 128 04 Prague 2, Czech Republic; karolina.peskova@vfn.cz (K.P.); renata.hermankova@vfn.cz (R.H.); riona.od@gmail.com (R.O.); pavel.jesina@vfn.cz (P.J.).
Renata HermánkováDepartment of Pediatrics and Adolescent Medicine, Charles University First Faculty of Medicine and General University Hospital, Ke Karlovu 2, 128 04 Prague 2, Czech Republic; karolina.peskova@vfn.cz (K.P.); renata.hermankova@vfn.cz (R.H.); riona.od@gmail.com (R.O.); pavel.jesina@vfn.cz (P.J.).
Riona O'DriscollDepartment of Pediatrics and Adolescent Medicine, Charles University First Faculty of Medicine and General University Hospital, Ke Karlovu 2, 128 04 Prague 2, Czech Republic; karolina.peskova@vfn.cz (K.P.); renata.hermankova@vfn.cz (R.H.); riona.od@gmail.com (R.O.); pavel.jesina@vfn.cz (P.J.).
Pavel JešinaDepartment of Pediatrics and Adolescent Medicine, Charles University First Faculty of Medicine and General University Hospital, Ke Karlovu 2, 128 04 Prague 2, Czech Republic; karolina.peskova@vfn.cz (K.P.); renata.hermankova@vfn.cz (R.H.); riona.od@gmail.com (R.O.); pavel.jesina@vfn.cz (P.J.).
Viktor KožichDepartment of Pediatrics and Adolescent Medicine, Charles University First Faculty of Medicine and General University Hospital, Ke Karlovu 2, 128 04 Prague 2, Czech Republic; karolina.peskova@vfn.cz (K.P.); renata.hermankova@vfn.cz (R.H.); riona.od@gmail.com (R.O.); pavel.jesina@vfn.cz (P.J.).ORCID https://orcid.org/0000-0001-5820-5277

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Appropriate and timely education about newborn screening (NBS) helps to foster benefits such as prompt follow up, to promote parents' autonomy via informed consent and minimize the harms such as reducing the impact of NBS false-positive results. The aim of this study was to ascertain how mothers are informed about NBS in the Czech Republic and to identify the variables associated with awareness about NBS. The questionnaires evaluating awareness and its determinants were mailed to a random sample of 3000 mothers 3 months post-delivery. The overall response rate was 42%. We analysed 1100 questionnaires and observed that better awareness about NBS was significantly associated with age, parity, number of information sources, child health status, size of maternity hospital and an obstetrician as the source of prenatally obtained information. Although the majority of mothers (77%) in our study recalled being informed by a physician or nurse in the neonatal ward, results have revealed that over 40% of participants did not have sufficient awareness about the principal aspects of NBS. Several measures including seminars for healthcare providers and the development and distribution of new educational materials were adopted to improve parental education about NBS in the Czech Republic.

Indexed as

consenteducationnewborn screeningparental awarenesssurvey

Identifiers

PMID33072994
PMCPMC7510194

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.