Evidence map›Paper›PMID 33072954›Full record

ArticleInternational journal of neonatal screening2018

Utilising the 'Getting to Outcomes

Baba P D Inusa, Kofi A Anie, Andrea Lamont, Livingstone G Dogara, Bola Ojo, Ifeoma Ijei, Wale Atoyebi, Larai Gwani, Esther Gani, Lewis Hsu

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In one paragraph

Article in International journal of neonatal screening, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Article
  4. Article
  5. The intersection of sickle cell disease, stigma, and pain in Africa.Hematology. American Society of Hematology. Education Program · 2024
    Review
  6. Review
  7. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Baba P D InusaDepartment Evelina Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London SE1 7EH, UK.ORCID https://orcid.org/0000-0003-2643-765X
Kofi A AnieDepartment of Haematology and Sickle Cell Centre, London North West University Healthcare NHS Trust and Imperial College, London NW10 7NS, UK.
Andrea LamontDepartment of Implementation Science, University of South Carolina, Columbia, SC 29208, USA.ORCID https://orcid.org/0000-0002-2427-014X
Livingstone G DogaraDepartment of Haematology, School of Medicine , Kaduna State University, Barau Dikko Teaching Hospital, Kaduna 800212, Nigeria.ORCID https://orcid.org/0000-0002-9603-6512
Bola OjoSickle Cell Cohort Research Foundation, WUSE Zone II, Abuja 70032, Nigeria.
Ifeoma IjeiDepartment of Haematology, School of Medicine , Kaduna State University, Barau Dikko Teaching Hospital, Kaduna 800212, Nigeria.
Wale AtoyebiDepartment of Haematology, Oxford University Hospitals NHS Foundation Trust, Oxford OX3 9DU, UK.
Larai GwaniKaduna State Assembly Office, Kaduna 800212, Nigeria.ORCID https://orcid.org/0000-0003-4807-1871
Esther GaniLibrary Department, Kaduna State University, Kaduna 800241, Nigeria.
Lewis HsuDepartment of Pediatric Hematology-Oncology, University of Illinois at Chicago, Chicago, IL 60612, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSickle Cell Disease (SCD) has been designated by WHO as a public health problem in sub-Saharan Africa, and the development of newborn screening (NBS) is crucial to the reduction of high SCD morbidity and mortality. Strategies from the field of implementation science can be useful for supporting the translation of NBS evidence from high income countries to the unique cultural context of sub-Saharan Africa. One such strategy is community engagement at all levels of the healthcare system, and a widely-used implementation science framework, "Getting to Outcomes

objectives(1) to obtain critical information on potential barriers to NBS in the disparate ethnic groups and settings (rural and urban) in the healthcare system of Kaduna State in Nigeria; and, (2) to assist in the readiness assessment of Kaduna in the implementation of a sustainable NBS programme for SCD.

methodsNeeds assessment was conducted with stakeholder focus groups for two days in Kaduna state, Nigeria, in November 2017.

resultsThe two-day focus group workshop had a total of 52 participants. Asking and answering the 10 GTO accountability questions provided a structured format to understand strengths and weaknesses in implementation. For example, we found a major communication gap between policy-makers and user groups.

conclusionIn a two-day community engagement workshop, stakeholders worked successfully together to address SCD issues, to engage with each other, to share knowledge, and to prepare to build NBS for SCD in the existing healthcare system.

Indexed as

‘Getting to Outcomes’implementation scienceKaduna Statenewborn screening)Nigeriapublic health engagementSickle Cell Diseasesub-Saharan Africa

Identifiers

PMID33072954
PMCPMC7510187

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.