Evidence map›Paper›PMID 33072663›Full record

ArticleFrontiers in pediatrics2020

SMART Work Design: Accelerating the Diagnosis of Rare Diseases in the Western Australian Undiagnosed Diseases Program.

Georgia J Hay, Florian E Klonek, Cati S Thomas, Alicia Bauskis, Gareth Baynam, Sharon K Parker

Open access · goldAbstract read
In one paragraph

Article in Frontiers in pediatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
1.8field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 11 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Georgia J HayCenter for Transformative Work Design, Future of Work Institute, Curtin University Graduate School of Business, Perth, WA, Australia.
Florian E KlonekCenter for Transformative Work Design, Future of Work Institute, Curtin University Graduate School of Business, Perth, WA, Australia.
Cati S ThomasCenter for Transformative Work Design, Future of Work Institute, Curtin University Graduate School of Business, Perth, WA, Australia.
Alicia BauskisOffice of Population Health Genomics, Department of Health, Government of Western Australia, Perth, WA, Australia.
Gareth BaynamGenetic Services of Western Australia, Department of Health, Government of Western Australia, Perth, WA, Australia.
Sharon K ParkerCenter for Transformative Work Design, Future of Work Institute, Curtin University Graduate School of Business, Perth, WA, Australia.
Curtin University · AUSafe Work Australia · AUGovernment of Western Australia · AUGovernment of Western Australia Department of Health · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The accurate and efficient diagnosis of rare diseases, many of which include congenital anomalies, depends largely on the specialists who diagnose them - including their ability to work alongside specialists from other fields and to take full advantage of cutting-edge precision medicine technologies and precision public health approaches. However, highly specialized clinicians operating within a historically-siloed healthcare system is antithetical to the multi-disciplinary, collaborative, and creative approach that facilitates the diagnosis of rare diseases. The Western Australian Undiagnosed Diseases Program (UDP-WA) successfully re-designed the work of the involved clinicians to facilitate teamworking across silos. To understand the effectiveness of the Western Australian program, we draw on a SMART work design perspective (i.e., work that involves Stimulation, Mastery, Agency, Relations, and Tolerable demands). We propose that the redesign was successful in part because it improved crucial psychosocial work characteristics that are less prevalent in the broader work system, as identified in the SMART model. Based on the effectiveness of UDP-WA and its SMART design, we provide a framework that clinicians, healthcare managers, and policymakers can consider when they re-design work so that they can create SMART jobs within healthcare.

Indexed as

congenital abnomarlitiesdiagnos*genomicsrare disease (RD)teamworkwork redesign

Identifiers

PMID33072663
PMCPMC7530738
OpenAlexW3048140017

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.