Evidence map›Paper›PMID 33067282›Full record

ArticleBMJ open2020

Perspectives on life participation by young adults with chronic kidney disease: an interview study.

Jasmijn Kerklaan, Elyssa Hannan, Camilla Hanson, Chandana Guha, Yeoungjee Cho, Martin Christian, Lorraine Hamiwka, Jessica Ryan, Aditi Sinha, Germaine Wong and 3 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed, 3 pooled it
6.6field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 3 syntheses or guidelines pooled it, 44 citations in OpenAlex.

  1. Pooled it
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  4. Article
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  6. Impact of CKD on Life Participation in Latin America.Kidney international reports · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 7 institutions in 5 countries.

Jasmijn KerklaanSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia j.kerklaan@amsterdamumc.nl.ORCID 0000-0001-9145-9914
Elyssa HannanSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Camilla HansonSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Chandana GuhaSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.ORCID 0000-0002-0767-4185
Yeoungjee ChoDepartment of Neprohology, Princess Alexandra Hospital, Brisbane, Queensland, Australia.
Martin ChristianDepartment of Paediatric Nephrology, Nottingham Children's Hospital, Nottingham, UK.
Lorraine HamiwkaDivision of Pediatric Nephrology, Alberta Children's Hospital, University of Calgary, Calgary, Alberta, Canada.
Jessica RyanDepartment of Nephrology, Monash Medical Centre, Melbourne, Victoria, Australia.
Aditi SinhaDivision of Nephrology, Department of Pediatrics, All India Institute of Medical Sciences, New Delhi, India.
Germaine WongSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Jonathan CraigCollege of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.
Jaap GroothoffDepartment of Pediatric Nephrology, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands.
Allison TongSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
The University of Sydney · AUAll India Institute of Medical Sciences · INAmsterdam UMC Location University of Amsterdam · NLFlinders University · AUMonash Medical Centre · AUThe University of Queensland · AUUniversity of Calgary · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo describe the perspectives on life participation by young adults with childhood-onset chronic kidney disease (CKD).

designSemi-structured interviews; thematic analysis.

settingMultiple centres across six countries (Australia, Canada, India, UK, USA and New Zealand).

participantsThirty young adults aged 18 to 35 years diagnosed with CKD during childhood.

resultsWe identified six themes: struggling with daily restrictions (debilitating symptoms and side effects, giving up valued activities, impossible to attend school and work, trapped in a medicalised life, overprotected by adults and cautious to avoid health risks); lagging and falling behind (delayed independence, failing to keep up with peers and socially inept); defeated and hopeless (incapacitated by worry, an uncertain and bleak future, unworthy of relationships and low self-esteem and shame); reorienting plans and goals (focussing on the day-to-day, planning parenthood and forward and flexible planning); immersing oneself in normal activities (refusing to miss out, finding enjoyment, determined to do what peers do and being present at social events); and striving to reach potential and seizing opportunities (encouragement from others, motivated by the illness, establishing new career goals and grateful for opportunities).

conclusionsYoung adults encounter lifestyle limitations and missed school and social opportunities as a consequence of developing CKD during childhood and as a consequence lack confidence and social skills, are uncertain of the future, and feel vulnerable. Some re-adjust their goals and become more determined to participate in 'normal' activities to avoid missing out. Strategies are needed to improve life participation in young adult 'graduates' of childhood CKD and thereby strengthen their mental and social well-being and enhance their overall health.

Indexed as

Renal Insufficiency, ChronicAdolescentAdultAustraliaCanadaHumansIndiaNew ZealandQualitative ResearchYoung Adultchronic renal failuredialysispaediatric nephrologyrenal transplantation

Identifiers

PMID33067282
PMCPMC7569939
OpenAlexW3093085799

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.