Evidence map›Paper›PMID 33063642›Full record

ArticleWestern journal of nursing research2021

Understanding of Health-related Decision-making Terminology Among Cancer Caregivers.

Karen O Moss, Sara L Douglas, Amy R Lipson, Eric Blackstone, Dionne Williams, Siobhan Aaron, Celia E Wills

Abstract read
In one paragraph

Article in Western journal of nursing research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Talking with clinicians about online cancer information: a survey of cancer patients and surrogate information seekers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Article
  3. Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Karen O MossCenter for Healthy Aging, Self-Management and Complex Care, College of Nursing, The Ohio State University, Columbus, OH, USA.ORCID 0000-0002-7350-3819
Sara L DouglasFrances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, USA.
Amy R LipsonFrances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, USA.ORCID 0000-0002-8419-6025
Eric BlackstoneFrances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, USA.
Dionne WilliamsFrances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, USA.
Siobhan AaronInterdisciplinary Training in Cancer, Caregiving, and End-of-Life Care, College of Nursing, University of Utah, USA.
Celia E WillsCenter for Healthy Aging, Self-Management and Complex Care, College of Nursing, The Ohio State University, Columbus, OH, USA.

Funding

Interdisciplinary Training in Cancer, Caregiving and End-of-Life CareT32NR013456 · NINR · UNIVERSITY OF UTAH · PI ELLINGTON, LEE A, MOONEY, KATHLEEN H · 2013 to 2022
$3.4M
Mapping Complex Influences on Aggressiveness of End of Life Cancer CareR01NR014856 · NINR · CASE WESTERN RESERVE UNIVERSITY · PI DOUGLAS, SARA L. · 2014 to 2017
$2.0M
Symptom Management and Palliative Care Research in Adults with Advanced DiseaseT32NR014213 · NINR · CASE WESTERN RESERVE UNIVERSITY · PI DALY, BARBARA · 2013 to 2017
$1.6M
NINR NIH HHS R01 NR014856NINR NIH HHS T32 NR013456NINR NIH HHS T32 NR014213
6 · The paper itself

Abstract

Research on understanding health-related decision-making terminology among family caregivers of adults living with advanced cancer is lacking. The purpose of this study was to examine interpretations of the meaning of health-related decision-making terminology such as quality-of-life and end-of-life among caregivers of adults living with advanced cancer as a basis for improved understanding of caregiver decision support needs. Interviews were conducted with a purposive sub-sample of 10 caregivers of adults diagnosed with advanced cancer who completed a longitudinal, descriptive study (NRO14856) of factors influencing cancer care decisions. Audio transcripts were analyzed using qualitative descriptive methods. Caregivers described interpretations of the meaning and process of decision-making and decision-related distress. Caregivers were uncertain about the meaning of end-of-life-related terminology, and a placed high value on quality-of-life and faith/spirituality in the decision-making process. Improvements in information and decision support interventions are needed to better support caregivers and subsequently patients towards informed cancer care decisions.

Indexed as

CaregiversNeoplasmsAdultDecision MakingHumansQualitative ResearchQuality of LifeAdvanced cancerdecision-makingend-of-lifefamily caregiverquality-of-life

Identifiers

PMID33063642
PMCPMC8050115

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.