ArticleJournal of patient experience2020
Telling the Story of Childhood Cancer-The Experience of Families After Treatment.
Article in Journal of patient experience, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
5 citing papers in PubMed, 7 citations in OpenAlex.
- Topic-Aware Summarization of Lived Health Care Experiences: Large Language Model Evaluation Study.JMIR medical informatics · 2026Article
- Assessing user experience with services: measuring subjective well-being in oncology hospitals.BMC health services research · 2025Article
- Substance use as subtext to health narratives: Identifying opportunities for improving care from community member perspectives.Patient education and counseling · 2024Article
- The Impact of Structural and Meso-Level Factors on Caregiver Coping Abilities When Supporting a Child with Cancer: A Qualitative Study.International journal of environmental research and public health · 2024Article
- Integrative review of school integration support following pediatric cancer.Journal of cancer survivorship : research and practice · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe Discovery Interview methodology was introduced to Oncology Services Group in 2012 as a service improvement strategy and was evaluated positively by staff and families. It enabled clinical staff to hear the deidentified families' stories, understand their experience, and implement process and practice enhancements.
objectiveThis study collected family stories following treatment for childhood cancer at the tertiary center in Queensland, with the goal of raising awareness and improving family experience.
methodTwenty-five families were interviewed via an interview spine which covered the major stages of cancer treatment and themes were extracted.
resultsMajor themes were psychological support needs, adapting to the new normal, and rebuilding relationships. After treatment, the parent had time to reflect on their experience and lost the reassurance of regularly attending the tertiary hospital. There was ongoing anxiety regarding relapse. Parents reported various coping strategies and some wanted to maintain contact with other oncology families. Families strived to get back to a level of normality such as attending school and experienced some challenges in relationships with family and friends.
conclusionFamilies needed support and reassurance from their local health professionals to navigate the ongoing challenges following treatment.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.