ArticleJournal of participatory medicine2018
Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services.
Article in Journal of participatory medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 40 citations in OpenAlex.
- Pooled it
- 'Global health action · 2026Observational
- Turning waiting time to action: co-designing solutions to support families waiting for appointments in an Australian metropolitan child development service.BMC health services research · 2026Article
- Diabetes-Related Foot Ulcers: The Role of Informal Caregivers' Experiences and Needs Regarding Involvement in Multidisciplinary Team Treatment. A Qualitative Study.International wound journal · 2026Article
- Self-management for youth and young adults with childhood-onset chronic conditions: A scoping review of parent and caregiver perspectives.Health care transitions · 2026Article
- Relatives' Involvement in the Care Pathway of Patients With Acquired Brain Injury or Malignant Brain Tumour: An Observational Study.Nursing research and practice · 2026Article
- An Interprofessional Approach to Developing Family Psychosocial Support Programs in a Pediatric Oncology Healthcare Setting.Cancers · 2025Article
- Leveraging the Patient and Family Voice in the Development of Patient Education: Supporting the Pediatric Oncology Experience.Cancers · 2025Article
- Evaluating Perceptions of the CANreduce 2.0 eHealth Intervention for Cannabis Use: Focus Group Study.Journal of medical Internet research · 2025Article
- The time is now:Clinical kidney journal · 2024Article
- Exploring stakeholder perceptions of implementing a pharmacist-led anticoagulation clinic in primary care settings: a cross-sectional study.Journal of pharmaceutical policy and practice · 2024Article
- Redesigning Rural Acute Stroke Care: A Person-Centered Approach.International journal of environmental research and public health · 2023Article
- Patient and family-centered care for children: A concept analysis.Belitung nursing journal · 2023Article
- The relationship between the living lab approach and successful implementation of healthcare innovations: an integrative review.BMJ open · 2022Review
- Hospital capacity for patient engagement in planning and improving health services: a cross-sectional survey.BMC health services research · 2021Article
- Electronic Games for Facilitating Social Interaction Between Parents With Cancer and Their Children During Hospitalization: Interdisciplinary Game Development.JMIR serious games · 2021Article
- Purposive sampling: complex or simple? Research case examples.Journal of research in nursing : JRN · 2020Article
- An academic perspective of participation in healthcare redesign.Health research policy and systems · 2019Article
- Working in partnership with communities to improve health and research outcomes. Comparisons and commonalities between the UK and South Africa.Primary health care research & development · 2019Article
- Patient Perspectives on the Challenges and Responsibilities of Living With Chronic Inflammatory Diseases: Qualitative Study.Journal of participatory medicine · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The involvement of patients and their families in the redesign of healthcare services is an important option in providing a service that addresses the patients' needs and improves health outcomes. However, it is a resource-intensive approach, and it is currently not clear when it should be used, and what should be the reasoning behind this decision. Some health systems of international standing have created a patient engagement program as a selling point. This paper discusses how co-led redesign can be beneficial in improving health service and more effectively engaging patients. Potential barriers for patient involvement are discussed. Patient involvement can be integrated into the health system at three main levels of engagement: direct care, organizational design and governance, and policy-making. The aim of this paper is to describe how co-led redesign is compatible with different levels of patient involvement and to address the challenges in delivering a co-led redesign in healthcare. Co-led redesign not only involves the collection of quantitative data for assessing the current systems but also the collection of qualitative data through patient, family, and staff interviews to determine the barriers to patient satisfaction. Co-led redesign is a resource-rich process that requires expertise in data collection and a clinical group that is devoted to implementing recommended changes. Currently, a number of countries have utilized co-led redesign for many different types of healthcare services. Resource availability and cost, process time, and lack of outcome measures are three major limiting factors.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.