ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
"Home wasn't really home anymore": Understanding caregivers' perspectives of the impact of blood cancer caregiving on the family system.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
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Who cites it
20 citing papers in PubMed, 31 citations in OpenAlex.
- Capturing the Lived Experiences of Informal Care in Acute Leukaemia: A Multinational Qualitative Study.The patient · 2026Article
- Parental cancer caregiving in emerging and young adulthood: the impact of sibling dynamics on the caregiving experience.Journal of health psychology · 2026Article
- Toward Better Conversations: Assessing Caregiver-Child Communication in Pediatric Oncology.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Characterizing open and avoidant communication in parents' caregiving experiences of adolescents and young adults (AYAs) living with blood cancer: Linking communication and psychosocial outcomes.Palliative & supportive care · 2026Article
- Associations of Critical Relationships With Distress and Burden in Caregivers of Patients With Brain Tumor.Psycho-oncology · 2025Article
- Family mutuality enhances the family resilience of colorectal cancer patients through positive family functioning.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
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- "You Want to Shield Your Kids": Patients' and Their Adult-Children's Serious Illness Conversations.Journal of pain and symptom management · 2025Article
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- Survivorship transitions in blood cancer: Identifying experiences and supportive care needs for caregivers.Journal of cancer survivorship : research and practice · 2024Article
- Self-Assessment Instruments for Supporting Family Caregivers: An Integrative Review.Healthcare (Basel, Switzerland) · 2024Review
- Factors influencing family resilience in adult patients with acute leukemia undergoing chemotherapy: A qualitative study.Asia-Pacific journal of oncology nursing · 2024Article
- Understanding parents uncertainty sources and management strategies while caring for a child diagnosed with a hematologic cancer.PEC innovation · 2023Article
- Adult sibling-related experiences while caring for a parent diagnosed with a blood cancer.Families, systems & health : the journal of collaborative family healthcare · 2023Article
- Validation of the transactional eHealth literacy instrument with cancer caregivers.PEC innovation · 2022Article
- Improving Clinical and Family Communication for Adult Child Caregivers of a Parent With a Blood Cancer: Single-Arm Pre-Post Pilot Intervention.JMIR cancer · 2022Article
- Impact of the family communication environment on burden and clinical communication in blood cancer caregiving.Psycho-oncology · 2022Article
- Parents Caring for Children Diagnosed with a Blood Cancer from Infancy to Emerging Adulthood: A Life span Perspective.Journal of adolescent and young adult oncology · 2022Article
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Corrections and comments
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Authors and funding
7 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeResearch on the impact of family cancer caregiving is primarily dyadic in focus. How caregiving affects the larger family system is less understood, yet knowing this is vital to developing supportive resources for caregivers, patients, and their families. To better understand how blood cancer caregiving impacts the family system, we explored the experiences of adult child caregivers of diagnosed parents and parent caregivers of diagnosed children.
methodsWe conducted semi-structured interviews with 39 midlife parent and adult child caregivers of patients with leukemia or lymphoma. Using a family systems theory lens, we conducted a thematic analysis using the constant comparative method to identify how caregiving impacts the larger family system.
resultsCaregivers ranged from age 30 to 64 (M = 43). They described four ways that caregiving impacted themselves and the larger family system: (1) disruption of home life, (2) emotional (dis)connection, (3) juggling competing roles, and (4) developing resiliency and intimacy. Perspectives within each category differed based on their relational role to the patient or in the broader family.
conclusionsThemes identify ways to provide support to both caregiver types. Support care resources could help families navigate gains and losses impacting the family system after a blood cancer diagnosis. Both caregiver types described experiencing (and/or their family experiencing) a loss in relational connection, feeling alone, and members distancing themselves. Both caregiver types also described gains in family functioning, like strengthened bonds and togetherness. Findings validate the need for family-centered support with key areas to address for healthy family functioning.
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