ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
MyPref: pilot study of a novel communication and decision-making tool for adolescents and young adults with advanced cancer.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 18 citations in OpenAlex.
- Trial
- Language of Hope in Conversations between Pediatric Oncologists, Children with Advanced Cancer, and their Families.Research square · 2026Article
- Patient Preferences for Cancer Care Within Hub-and-Spoke Networks: A Discrete Choice Experiment.Journal of the American College of Surgeons · 2026Article
- Not Too Young to Understand: Meaning Making From the Perspectives of School-Aged Children With Cancer-A Scoping Review.Psycho-oncology · 2026Article
- The implementation and strategy of triadic communication in pediatric oncology: a scoping review.Pediatric research · 2025Article
- Treatment and Decision-Making Preferences of Adolescents and Young Adults With Advanced Cancer and Their Parents or Trusted Persons: An Adaptive Conjoint Analysis Study.Pediatric blood & cancer · 2025Article
- Embedding a Choice Experiment in an Online Decision Aid or Tool: Scoping Review.Journal of medical Internet research · 2025Article
- Navigating the Healthcare System with a Complex Chronic Condition: Multidimensional Roles of Adolescents, Young Adults, and Parents.Children (Basel, Switzerland) · 2025Article
- Making Use of Technology to Improve Stated Preference Studies.The patient · 2024Review
- Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents.Genetics in medicine : official journal of the American College of Medical Genetics · 2024Article
- Mixed-method examination of factors associated with adolescent decision-making and involvement in care in the context of advanced cancer.Palliative & supportive care · 2024Article
- Palliative Care Interventions Among Adolescents and Young Adults with Serious Illness: A Scoping Review.Clinical practice in pediatric psychology · 2023Article
- Approaches for Discussing Clinical Trials with Pediatric Oncology Patients and Their Families.Current oncology reports · 2022Review
- Mapping the Landscape of Advance Care Planning in Adolescents and Young Adults Receiving Allogeneic Hematopoietic Stem Cell Transplantation: A 5-Year Retrospective Review.Transplantation and cellular therapy · 2022Article
- A Support System for Adolescent and Young Adult Patients with Cancer at a Comprehensive Cancer Center.JMA journal · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 5 institutions in 1 country.
Funding
Abstract
purposeAdolescents and young adults (AYAs) with cancer report feeling ill-informed about their cancer treatment options. Tools are needed to inform AYAs about treatment choices and amplify the AYA's voice in medical decision-making. We developed MyPref, a conjoint-analysis based tool that quantifies AYA preferences for future cancer treatments.
methodsWe conducted a staged pilot study of MyPref utilizing an intervention mixed methods design. AYAs and their parent or trusted person (PTP) completed MyPref and received a summary report of their preferences for treatment-related factors. Participants later completed the Preparation for Decision Making Scale and MyPref Experience Questionnaire and engaged in semi-structured interviews. Oncologists reported on the perceived accuracy and utility of MyPref. We used a weaving technique for presenting mixed methods data.
resultsFifteen AYAs with advanced cancer, 7 PTPs, and 12 providers participated in this pilot; 32 (94%) completed all study items. AYA/PTPs stated study participation was useful and believed MyPref allowed for improved understanding of treatment factors and consideration, organization, and visualization of preferences. All providers agreed that MyPref made them think about patient's preferences and 9 (75%) reported they planned to change their approach to discussions about preferences for future treatments.
conclusionMyPref is an objective way to estimate AYA and PTP preferences for future treatment characteristics. This novel tool may be a useful way to engage AYAs and PTPs in discussions around preferences for treatment and prepare AYAs for future decision-making. We are currently evaluating this tool longitudinally to determine the impact on actual treatment decisions.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.