Evidence map›Paper›PMID 33026944›Full record

ArticleJournal of palliative medicine2021

A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs.

Katie E Nelson, Rebecca Wright, Marlena Fisher, Binu Koirala, Benjamin Roberts, Danetta H Sloan, David S Wu, Patricia M Davidson

Abstract read
In one paragraph

Article in Journal of palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
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  9. Equity of access to palliative care: a scoping review.International journal for equity in health · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Katie E NelsonJohns Hopkins University School of Nursing, Baltimore, Maryland, USA.
Rebecca WrightJohns Hopkins University School of Nursing, Baltimore, Maryland, USA.
Marlena FisherJohns Hopkins University School of Nursing, Baltimore, Maryland, USA.
Binu KoiralaJohns Hopkins University School of Nursing, Baltimore, Maryland, USA.
Benjamin RobertsJohns Hopkins Bayview Medical Center, Baltimore, Maryland, USA.
Danetta H SloanDepartment of Health, Behavior, and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
David S WuDepartment of Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Patricia M DavidsonJohns Hopkins University School of Nursing, Baltimore, Maryland, USA.

Funding

Informal Advance Care Planning with Family in Blacks with End Stage Renal Disease on HemodialysisF31NR019211 · NINR · JOHNS HOPKINS UNIVERSITY · PI FISHER, MARLENA CAMILLE · 2020 to 2022
$136k
Exploring End-of-Life Care: Access and Perspectives among the A'aniniiin and Nakoda TribesF31NR020145 · NINR · JOHNS HOPKINS UNIVERSITY · PI NELSON, KATIE ELIZABETH · 2021 to 2023
$75k
NINR NIH HHS F31 NR019211NINR NIH HHS F31 NR020145
6 · The paper itself

Abstract

Palliative care is a values-driven approach for providing holistic care for individuals and their families enduring serious life-limiting illness. Despite its proven benefits, access and acceptance is not uniform across society. The genesis of palliative care was developed through a traditional Western lens, which dictated models of interaction and communication. As the importance of palliative care is increasingly recognized, barriers to accessing services and perceptions of relevance and appropriateness are being given greater consideration. The COVID-19 pandemic and recent social justice movements in the United States, and around the world, have led to an important moment in time for the palliative care community to step back and consider opportunities for expansion and growth. This article reviews traditional models of palliative care delivery and outlines a modified conceptual framework to support researchers, clinicians, and staff in evaluating priorities for ensuring individualized patient needs are addressed from a position of equity, to create an actionable path forward.

Indexed as

Healthcare DisparitiesHealth Services AccessibilityModels, TheoreticalPalliative CareCOVID-19HumansPandemicsPatient-Centered CareSARS-CoV-2Social Justiceconceptual frameworkCOVID-19health care disparitiespalliative carerace factors

Identifiers

PMID33026944
PMCPMC8255316

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.