Observational studyArthritis care & research2021
Addressing Health Literacy Needs in Rheumatology: Which Patient Health Literacy Profiles Need the Attention of Health Professionals?
Observational study in Arthritis care & research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
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Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The information required by people with inflammatory arthritis when taking Methotrexate: a mixed-methods systematic review.Rheumatology (Oxford, England) · 2024Pooled it
- Health literacy in context: struggling to self-manage diabetes - a longitudinal qualitative study.BMJ open · 2022Trial
- Unravelling complex relationships between health literacy and shared decision-making: a cross-sectional study in patients attending rheumatology rehabilitation.EULAR rheumatology open · 2026Article
- Diversity of health literacy strengths and challenges among migrant patients with inflammatory rheumatic diseases: a qualitative exploration.Rheumatology advances in practice · 2026Article
- Health literacy and self-management of people living with chronic obstructive pulmonary disease or type 2 diabetes in Greenland: a qualitative interpretive description study.BMC public health · 2025Article
- Article
- Health literacy strengths and challenges of Australian smokers: a cluster analysis.Health promotion international · 2025Article
- Health literacy profiles in kidney transplanted patients: A cluster analysis.Journal of renal care · 2024Article
- Profiles of health literacy and digital health literacy in clusters of hospitalised patients: a single-centre, cross-sectional study.BMJ open · 2024Article
- Specialty drug use for autoimmune conditions varies by race and wage among employees with employer-sponsored health insurance.Journal of managed care & specialty pharmacy · 2024Observational
- The Rising Challenge of Poor Health Literacy of Patients with Systemic Sclerosis: Preliminary Data Identify Important Unmet Needs in an Italian Cohort.Nursing reports (Pavia, Italy) · 2024Article
- Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO).Annals of the rheumatic diseases · 2024Article
- Visual decision aids to support communication and shared decision-making: How are they valued and used in practice?PloS one · 2024Article
- Health literacy of rheumatology patients in three clinics in Australia and its association with sociodemographic and clinical characteristics.Rheumatology advances in practice · 2024Article
- Health literacy strengths and needs among migrant communities from Portuguese-speaking African countries in Portugal: a cross-sectional study.Frontiers in public health · 2024Article
- Assessment Tools for Measuring Health Literacy and Digital Health Literacy in a Hospital Setting: A Scoping Review.Healthcare (Basel, Switzerland) · 2023Article
- The impact of health literacy: associations with disease activity and medication prescription in patients with rheumatoid arthritis.Rheumatology (Oxford, England) · 2023Article
- Researchers in rheumatology should avoid categorization of continuous predictor variables.BMC medical research methodology · 2023Article
- Health literacy strengths and challenges among residents of a resource-poor village in rural India: Epidemiological and cluster analyses.PLOS global public health · 2023Article
- Exploring discordance between Health Literacy Questionnaire scores of people with RMDs and assessment by treating health professionals.Rheumatology (Oxford, England) · 2022Article
Corrections and comments
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Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo identify and describe health literacy profiles of patients with rheumatic diseases and explore whether the identified health literacy profiles can be generalized to a broader rheumatology context.
methodsPatients with rheumatoid arthritis, spondyloarthritis, and gout from 3 hospitals in different regions in The Netherlands completed the Health Literacy Questionnaire (HLQ). Hierarchical cluster analysis was used to identify patients' health literacy profiles based on 9 HLQ domains. A multinomial regression model with the identified health literacy profiles as the dependent variable was fitted to assess whether patients with a given disease type or attending a given hospital were more likely to belong to a specific profile.
resultsAmong 895 participating patients, the lowest mean HLQ domain scores (indicating most difficulty) were found for "critical appraisal," "navigating the health system," and "finding good health information." The 10 identified profiles revealed substantial diversity in combinations of strengths and weaknesses. While 42% of patients scored moderate to high on all 9 domains (profiles 1 and 3), another 42% of patients (profiles 2, 4, 5, and 6) clearly struggled with 1 or several aspects of health literacy. Notably, 16% (profiles 7-10) exhibited difficulty across a majority of health literacy domains. The probability of belonging to one of the profiles was independent of the hospital where the patient was treated or the type of rheumatic disease.
conclusionTen distinct health literacy profiles were identified among patients with rheumatic diseases, independent of disease type and treating hospital. These profiles can be used to facilitate the development of health literacy interventions in rheumatology.
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