ArticlePersonalized medicine2020
Engaging community stakeholders in research on best practices for clinical genomic sequencing.
Open access · hybridAbstract read
In one paragraph
Article in Personalized medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
1.8field-weighted citation impact, top 14% of its field
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 17 citations in OpenAlex.
- Question prompt lists and caregiver question asking in pediatric specialty appointments: A randomized controlled trial.Patient education and counseling · 2023Trial
- Trial
- The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Exome sequencing early in outpatient evaluation in NCGENES 2: Changing the course of the diagnostic odyssey?HGG advances · 2026Article
- North Carolina primary care provider perspectives on expanded genomic screening in children.BMC medical genomics · 2026Article
- Clinical exome sequencing efficacy and phenotypic expansions involving non-isolated congenital anomalies of kidney and urinary tract (CAKUT+).European journal of human genetics : EJHG · 2025Article
- A Community-Engaged Approach to Enhancing Participation in Genomic Research in Rare and Understudied Cancer Populations.International journal of environmental research and public health · 2025Article
- Primary Care Provider Perspectives on Expanded Genomic Screening in Children.Research square · 2025Article
- Age-Based Genomic Screening: Pediatric Providers' Perspectives on Implementation.Public health genomics · 2025Article
- Community Collaboration in Public Health Genetic Literacy: Methods for Co-Designing Educational Resources for Equitable Genomics Research and Practice.Public health genomics · 2025Article
- Using visual storytelling to share aggregate findings with families participating in clinical genomics research.Genetics in medicine open · 2024Article
- Age-Based Genomic Screening during Childhood: Ethical and Practical Considerations in Public Health Genomics Implementation.International journal of neonatal screening · 2023Article
- The social value of genomic sequencing for disadvantaged families facing rare disease.Social science & medicine (1982) · 2022Article
- Integration of stakeholder engagement from development to dissemination in genomic medicine research: Approaches and outcomes from the CSER Consortium.Genetics in medicine : official journal of the American College of Medical Genetics · 2022Article
- Parental Guidance Suggested: Engaging Parents as Partners in Research Studies of Genomic Screening for a Pediatric Population.Frontiers in genetics · 2022Article
- Advancing precision public health using human genomics: examples from the field and future research opportunities.Genome medicine · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
17 authors at 6 institutions in 1 country.
Ida GriesemerDepartment of Health Behavior, UNC Chapel Hill, Chapel Hill, NC, USA.ORCID 0000-0001-6556-2520
Brooke S StaleyDepartment of Epidemiology, UNC Chapel Hill, Chapel Hill, NC, USA.ORCID 0000-0003-1502-602X
Alexandra F LightfootDepartment of Health Behavior, UNC Chapel Hill, Chapel Hill, NC, USA.ORCID 0000-0002-9681-5081
Lizzy BainParent/Advocate, Knightdale, NC, USA.
Derrick ByrdParent/Advocate, Family Resource Center South Atlantic, Raleigh, NC, USA.
Carol ConwayParent/Advocate, Parent Advocates for Adult Children with Intellectual &/or Developmental Disabilities in NC, Chapel Hill, NC, USA.
Tracey L GrantDepartment of Genetics, UNC Chapel Hill, Chapel Hill, NC, USA.
Barbara LeachParent/Advocate, Family Support Program, School of Social Work, UNC Chapel Hill, Chapel Hill, NC, USA.
Laura MilkoDepartment of Genetics, UNC Chapel Hill, Chapel Hill, NC, USA.ORCID 0000-0002-8060-9013
Lonna MollisonDepartment of Genetics, UNC Chapel Hill, Chapel Hill, NC, USA.
Nadiah PorterParent/Advocate, Durham, NC, USA.
Sharron ReidParent/Advocate, Wake County Sickle Cell Support Group, Raleigh, NC, USA.
Gerri SmithParent/Advocate, Holly Springs, NC, USA.
Margaret WaltzDepartment of Social Medicine, UNC Chapel Hill, Chapel Hill, NC, USA.
Jonathan S BergDepartment of Genetics, UNC Chapel Hill, Chapel Hill, NC, USA.ORCID 0000-0003-2360-2664
Christine RiniDepartment of Medical Social Sciences, Feinberg School of Medicine & Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL, USA.
Julianne M O'DanielDepartment of Genetics, UNC Chapel Hill, Chapel Hill, NC, USA.ORCID 0000-0001-5843-4432
University of North Carolina at Chapel Hill · USNurse-Family Partnership · USAdvocates for Youth · USCare Resource · USNorthwestern University · USWake County Human Services · US
Funding
Re-Entry Supplement: Investigation of Oral Microbial Enzymes for the Detection and Treatment of Periodontal DiseaseUL1TR002489 · NCATS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BUSE, JOHN BERNARD, SHAHEEN, NICHOLAS J · 2018 to 2022
$48.6MNorth Carolina Clinical Genomic Evaluation by Next-gen Exome Sequencing 2U01HG006487 · NHGRI · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BERG, JONATHAN S, POWELL, BRADFORD C. · 2012 to 2021
$22.7MUNC-CH TRAINING PROGRAM IN HEALTH SERVICES RESEARCHT32HS000032 · AHRQ · UNIV OF NORTH CAROLINA CHAPEL HILL · PI HOLMES, GEORGE M · 1989 to 2024
$8.2MThe Genetic Epidemiology of Heart, Lung, and Blood TraitsTraining Grant (GenHLB)T32HL129982 · NHLBI · UNIV OF NORTH CAROLINA CHAPEL HILL · PI Christy Leigh Avery, KAREN L. MOHLKE · 2016 to 2026
$3.8MAHRQ HHS T32 HS000032NCATS NIH HHS UL1 TR002489NCATS NIH HHS UL1TR002489NCI NIH HHS RFA-HG-12-009NHGRI NIH HHS U01 HG006487NHGRI NIH HHS U01HG006487NHLBI NIH HHS T32 HL129982
Abstract
PubMed holds no abstract for this paper.
Indexed as
AdultBenchmarkingChildChromosome MappingFemaleGenomicsHumansMaleMiddle AgedPractice Guidelines as TopicProteomicsPublic HealthStakeholder ParticipationWhole Genome Sequencingclinical trialcommunity–academic partnershipscommunity engagementdiagnostic odysseygeneticsgenomic sequencinghealth equityhealth services researchprecision medicineunderserved populations
Identifiers
What OpenQuestion holds
Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390
Registered trials
None linked
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.