Evidence map›Paper›PMID 33025456›Full record

ArticleCanadian journal of anaesthesia = Journal canadien d'anesthesie2020

Patient engagement in a Canadian consensus forum for heart donation after circulatory determination of death.

Andrew Healey, Amanda van Beinum, Laura Hornby, Lindsay C Wilson, Sylvain Bédard, Heather Berrigan, Diana Brodrecht, Clay Gillrie, Thomas Shing, Jonathan Towers and 2 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Canadian journal of anaesthesia = Journal canadien d'anesthesie, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Guideline
  3. Review
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Andrew HealeyDivision of Emergency Medicine, Department of Medicine, McMaster University, Hamilton, ON, Canada. ahealeymd@gmail.com.ORCID http://orcid.org/0000-0002-4540-0425
Amanda van BeinumDepartment of Sociology & Anthropology, Carleton University, Ottawa, ON, Canada.
Laura HornbyChildren's Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada.ORCID http://orcid.org/0000-0003-4079-8080
Lindsay C WilsonCanadian Blood Services, Ottawa, ON, Canada.ORCID http://orcid.org/0000-0002-1216-2942
Sylvain Bédard, Montreal, QC, Canada.
Heather Berrigan, Halifax, NS, Canada.
Diana Brodrecht, Kitchener, ON, Canada.
Clay GillrieCanadian Blood Services, Ottawa, ON, Canada.ORCID http://orcid.org/0000-0003-1263-1208
Thomas Shing, Hertfordshire, England, UK.
Jonathan Towers, Halifax, NS, Canada.
Everad TilokeeCanadian Blood Services, Ottawa, ON, Canada.
Sam D ShemieCanadian Blood Services, Ottawa, ON, Canada.ORCID http://orcid.org/0000-0002-9776-1257

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeHeart donation and transplantation following circulatory determination of death has yet to be performed in Canada. A consensus forum was held to provide expert guidance to inform policy with a comprehensive patient partner strategy. This paper describes the process used to create fulsome patient partner engagement resulting in mutually beneficial policy development in this complex area.

methodsA wide-ranging process for involving patient partners in this area included pre-meeting education, in-meeting expert support, full participation and permission to step back if desired, and post-meeting debriefing. Following the meeting, a questionnaire was used to guide a debrief discussion with patient partners and steering committee members who co-authored this paper.

resultsFive key themes arose that echoed the sentiments and contributions made by patient partners, including: 1) a strong desire to improve the system, 2) gratitude and honour, 3) expert support and process, 4) simplification of complex concepts, and 5) mutual benefit expressed by patient partners and healthcare professionals.

conclusionDespite the complexity of the content and the emotionally sensitive nature of discussions around deceased organ donation, a well-planned strategy to involve patient partners is important, impactful, and central to the process. This suggests a broad interprofessional audience can engage with properly prepared and supported patient partners to strengthen and focus dialogue and outputs in the development of health policy in the donation and transplant sector.

Indexed as

Patient ParticipationTissue and Organ ProcurementCanadaConsensusDeathHumansTissue Donorsdeceased donationheartpatient partnertransplantation

Identifiers

PMID33025456
PMCPMC7716912

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.