Evidence map›Paper›PMID 33007115›Full record

ArticleClinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology2021

A mixed-methods analysis of younger adults' perceptions of asthma, self-management, and preventive care: "This isn't helping me none".

Jennifer R Mammen, Kelsey Turgeon, Ashley Philibert, Judith D Schoonmaker, James Java, Jill Halterman, Marc N Berliant, Amber Crowley, Marina Reznik, Jonathan M Feldman and 2 more

Open access · hybridAbstract read
In one paragraph

Article in Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
0.6field-weighted citation impact, top 32% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 17 citations in OpenAlex.

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  6. "It is kind of like a responsibility thing": transitional challenges in asthma medication adherence among adolescents and young adults.The Journal of asthma : official journal of the Association for the Care of Asthma · 2022
    Article
  7. A mixed-methods analysis of younger adults' perceptions of asthma, self-management, and preventive care: "This isn't helping me none".Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 3 institutions in 1 country.

Jennifer R MammenCollege of Nursing, University of Rhode Island, Kingston, RI, USA.ORCID 0000-0001-7858-9183
Kelsey TurgeonCollege of Nursing, University of Rhode Island, Kingston, RI, USA.
Ashley PhilibertCollege of Nursing, University of Rhode Island, Kingston, RI, USA.
Judith D SchoonmakerUniversity of Rochester School of Nursing, Rochester, NY, USA.
James JavaDepartment of Biostatistics and Computational Biology, University of Rochester, Rochester, NY, USA.
Jill HaltermanDepartment of Pediatrics, University of Rochester School of Medicine, Rochester, NY, USA.
Marc N BerliantDepartment of Internal Medicine, University of Rochester School of Medicine, Rochester, NY, USA.
Amber CrowleyDepartment of Internal Medicine, University of Rochester School of Medicine, Rochester, NY, USA.
Marina ReznikDepartment of Pediatrics, Division of Academic General Pediatrics, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY, USA.
Jonathan M FeldmanDepartment of Pediatrics, Division of Academic General Pediatrics, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY, USA.
Robert J FortunaDepartment of Pediatrics, University of Rochester School of Medicine, Rochester, NY, USA.
Kimberly ArcoleoCollege of Nursing, University of Rhode Island, Kingston, RI, USA.
University of Rochester · USUniversity of Rhode Island · USAlbert Einstein College of Medicine · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundYoung adults (ages 18-44) have increased emergency department use for asthma and poor adherence to medications. The objective of this mixed-methods study was to understand experiences with and approaches to managing asthma, of which little is known in this age group.

methodsSurveys (Asthma Control Questionnaire, Asthma Quality of Life Questionnaire) and 1:1 semi-structured interviews were used to explore experiences with asthma, symptoms, self-management behaviours, and relationship to asthma control and quality of life. Qualitative data were analysed using content analysis techniques. Descriptive statistics and bivariate correlations were used to examine distributive characteristics and associations between variables.

resultsForty urban adults participated (mean age 32.7 ± 6.2, 1σ). Coughing was reported nearly 46% more often than wheezing, with 42.5% (17/40) coughing until the point of vomiting most days. Most participants delayed using medication for symptoms due to misperceptions about inhalers. Higher symptom frequency and worse asthma control were associated with greater use of non-pharmacologic symptom management strategies (r = 0.645, P < .001; r = 0.360, P = .022, respectively). Five themes were identified regarding young adults experiences with asthma: (1) having asthma means being limited and missing out on life; (2) health care for asthma is burdensome, and other things are more important; (3) there is not enough personal benefit in medical interactions to make preventive care worthwhile; (4) there are insufficient support and education about asthma for adults; and (5) people normalize chronic symptoms over time and find ways of coping that fit with their lifestyle. CONCLUSIONS AND CLINICAL RELEVANCE: Young adults may tolerate symptoms without using quick-relief medication or seeking preventive care. Increasing engagement with preventive services will require decreasing perceived burdens and increasing the personal benefits of care. Evaluating for non-pharmacologic approaches to managing symptoms and asthma-related coughing may identify uncontrolled asthma. Enhanced training for clinicians in patient-centric asthma care may be needed.

Indexed as

Health Knowledge, Attitudes, PracticePreventive MedicineSelf-ManagementAdultAsthmaCoughFemaleForced Expiratory VolumeHumansMaleMedication AdherencePatient Medication KnowledgePrimary Health CareQualitative ResearchQuality of LifeRespiratory Soundsasthmaself-managementyoung adult

Identifiers

PMID33007115
PMCPMC7821137
OpenAlexW3091300748

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.