ArticleResearch involvement and engagement2020
Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program.
Article in Research involvement and engagement, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05214352 (Using the Involvement Matrix for the Implication of Young People With Cerebral Palsy in the Elaboration of an Intervention Program to Encourage Participation in the Community.), which is not on this map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Using the Involvement Matrix for the Implication of Young People With Cerebral Palsy in the Elaboration of an Intervention Program to Encourage Participation in the Community.
Who cites it
16 citing papers in PubMed.
- Better together: participatory action research for co-constructing an intervention to enhance leisure activities in non-ambulatory adolescents with cerebral palsy.Research involvement and engagement · 2025Article
- Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Youth patient and public involvement in health research in the Netherlands: experiences from a multi-stakeholder interview study.Research involvement and engagement · 2025Article
- Working with children and young people in research: Supportive practices and pathways to impact.Journal of child health care : for professionals working with children in the hospital and community · 2025Review
- Establishing patient partners' roles on research teams: a scoping review.Research involvement and engagement · 2024Article
- Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed patient and public involvement within the EUonQoL project.Research involvement and engagement · 2024Review
- Asking those who know their needs best: A framework for active engagement and involvement of childhood cancer survivors and parents in the process of psychosocial research-A workshop report.Cancer reports (Hoboken, N.J.) · 2024Article
- Patient and public involvement in the development of the digital tool MyBoT to support communication between young people with a chronic condition and care providers.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Through the looking glass: empowering youth community advisory boards in Tanzania as a sustainable youth engagement model to inform policy and practice.Frontiers in public health · 2024Article
- The INSCHOOL project: showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people with long-term health conditions.Research involvement and engagement · 2023Article
- Co-Design of an Intervention to Increase the Participation in Leisure Activities Including Adolescents with Cerebral Palsy with GMFCS Levels IV and V: A Study Protocol.Journal of clinical medicine · 2022Article
- The importance of children and young person involvement in scoping the need for a paediatric glucocorticoid-associated patient reported outcome measure.BMC rheumatology · 2022Article
- The involvement matrix as a framework for involving youth with severe communication disabilities in developing health education materials.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Evaluating meaningful impact of Patient and Public Involvement: A Q methodology study among researchers and young people with a chronic condition.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- How paediatric departments in Sweden facilitate giving children a voice on their experiences of healthcare: A cross-sectional study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Research- and health-related youth advisory groups in Canada: An environmental scan with stakeholder interviews.Health expectations : an international journal of public participation in health care and health policy · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
plain english summaryABSTRACT:
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.