ArticleScientific reports2020
Endometriosis and chronic pelvic pain have similar impact on women, but time to diagnosis is decreasing: an Australian survey.
Article in Scientific reports, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 53 papers, 2 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
53 citing papers in PubMed, 2 syntheses or guidelines pooled it, 134 citations in OpenAlex.
- Time to Diagnose Endometriosis: Current Status, Challenges and Regional Characteristics-A Systematic Literature Review.BJOG : an international journal of obstetrics and gynaecology · 2025Pooled it
- The Efficacy of Self-Management Strategies for Females with Endometriosis: a Systematic Review.Reproductive sciences (Thousand Oaks, Calif.) · 2023Pooled it
- The Effect of Laser Biostimulation at Sensitized Acupoints on Chronic Pelvic Pain and Quality of Life in Women with Pelvic Inflammatory Disease: A Randomized Controlled Trial.Medicina (Kaunas, Lithuania) · 2025Trial
- Diagnostic Accuracy of Transvaginal Ultrasound for Endometriosis Does Not Differ Between Women Undergoing Their First Versus Any Subsequent Surgical Treatment.The Australian & New Zealand journal of obstetrics & gynaecology · 2026Article
- Profiling Relationships Between Abdominal Pain, Gastrointestinal Symptoms and Pelvic Pain Bothersomeness in Young Females.The Australian & New Zealand journal of obstetrics & gynaecology · 2026Observational
- Bridging Clinical Care and Self-Management: Impact of Nursing Module Based on WHO's Universal Self-Care Framework in Women with Endometriosis.Healthcare (Basel, Switzerland) · 2026Article
- Article
- Development of an early prediction model for endometriosis risk: the simplified adolescent factors for endometriosis (SAFE) score.EClinicalMedicine · 2026Article
- The impact of endometriosis on educational and professional pathways: a cross-sectional online study.BMC psychology · 2026Article
- Age of diagnosis with endometriosis and potential predicting factors: A single-center cross-sectional study.PloS one · 2026Article
- Shortening the Endometriosis Diagnostic Pathway: A Narrative Review and Research Agenda.International journal of women's health · 2026Review
- The overlooked link between reproductive system disorders and depression: a cohort study in 2 million women.Psychological medicine · 2025Article
- Exploring delay to diagnosis of endometriosis, a healthcare professional perspective.BMC health services research · 2025Article
- Sex- and gender-responsive management of anxiety disorders: future pathways for research, education, policy and practice.The Medical journal of Australia · 2025Review
- Article
- 'The Difficulty of Diagnosis Compromises Patient Care for People With Endometriosis': Interview Study With Aotearoa New Zealand General Practitioners.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Quality of Life in Women with Endometriosis: The Importance of Socio-Demographic, Diagnostic-Therapeutic, and Psychological Factors.Journal of clinical medicine · 2025Article
- From Insight into Action: Understanding How Employer Perspectives Shape Endometriosis-Inclusive Workplace Policies.Healthcare (Basel, Switzerland) · 2025Article
- Validity and Reliability of the Hungarian Version of the Pain Self-Efficacy Questionnaire Among Women with Endometriosis and Chronic Pelvic Pain.Women's health reports (New Rochelle, N.Y.) · 2025Article
- Leveraging the role of the microbiome in endometriosis: novel non-invasive and therapeutic approaches.Frontiers in immunology · 2025Review
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Chronic pelvic pain (CPP) affects a significant number of women worldwide. Internationally, people with endometriosis report significant negative impact across many areas of their life. We aimed to use an online survey using the EndoCost tool to determine if there was any difference in the impact of CPP in those with vs. those without a confirmed diagnosis of endometriosis, and if there was any change in diagnostic delay since the introduction of clinical guidelines in 2005. 409 responses were received; 340 with a diagnosis of endometriosis and 69 with no diagnosis. People with CPP, regardless of diagnosis, reported moderate to severe dysmenorrhea and non-cyclical pelvic pain. Dyspareunia was also common. Significant negative impact was reported for social, academic, and sexual/romantic relationships in both cohorts. In the endometriosis cohort there was a mean diagnostic delay of eight years, however there was a reduction in both the diagnostic delay (p < 0.001) and number of doctors seen before diagnosis (p < 0.001) in those presenting more recently. Both endometriosis and CPP have significant negative impact. Whilst there is a decrease in the time to diagnosis, there is an urgent need for improved treatment options and support for women with the disease once the diagnosis is made.
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