ArticleInternational journal of environmental research and public health2020
Experiences of Mothers Facing the Prognosis of Their Children with Complex Congenital Heart Disease.
Article in International journal of environmental research and public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 18 citations in OpenAlex.
- The Role of Artificial Intelligence in Clinical Psychology: How AI and NLP Systems Are Reshaping Psychological Interventions. A Systematic Review.Clinical psychology & psychotherapyPooled it
- The Lived Experiences of Parents of Children Diagnosed With Congenital Heart Disease: Challenges, Emotional Responses, and Sources of Strength.Nursing open · 2026Article
- Hope in Pediatric Palliative Care: A Systematic Review.Children (Basel, Switzerland) · 2026Review
- Parents of Children with Congenital Heart Disease (CHD): A Narrative Study of the Social and Clinical Impact of CHD Diagnosis on Their Role and Health.Behavioral sciences (Basel, Switzerland) · 2025Article
- Prioritizing family-centered developmental care: insights from parents of children with critical congenital heart disease: a qualitative study.European journal of pediatrics · 2024Article
- Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions.Children (Basel, Switzerland) · 2024Article
- Toxic Stress as a Potential Factor Inducing Negative Emotions in Parents of Newborns and Infants with Cyanotic Congenital Heart Disease.Children (Basel, Switzerland) · 2023Article
- Becoming a Teenager after Early Surgical Ventricular Septal Defect (VSD) Repair: Longitudinal Biopsychological Data on Mental Health and Maternal Involvement.Journal of clinical medicine · 2022Article
- Redefining the Relationship: Palliative Care in Critical Perinatal and Neonatal Cardiac Patients.Children (Basel, Switzerland) · 2021Review
- Being parent of a child with congenital heart disease, what does it mean? A qualitative research.BMC psychology · 2021Article
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Mothers of children with complex congenital heart disease face unique challenges and emotional burdens, while their children go through physical and psychological difficulties during disease progression. In this study, we aimed to explore the in-depth experiences and feelings of mothers facing the prognosis of their children with complex congenital heart disease that was surgically corrected. This is a descriptive qualitative study. We conducted semi-structured, face-to-face interviews with 12 mothers of children with complex congenital heart disease at a tertiary hospital in Seoul, Korea. The interview data were analyzed by content analysis. Participants were mothers aged between 40-58 years whose children were diagnosed with complex congenital heart disease which was surgically corrected. Based on the content analysis, the mothers' experiences and feelings were categorized as immense suffering and adapting to a new life. Under the main categories, the concepts included feeling of abandonment, anxiety with potentially losing their children, having hope, seeking reassurance, being encouraged, and trying to embrace the situation. Mothers who cared for their children with complex congenital heart disease expressed emotions that changed sequentially alongside physical and psychosocial changes in the children. The results of this study are valuable for understanding the experiences and emotions of mothers facing the prognosis of their children with complex congenital heart disease in order to aid in the development of programs that support these mothers.
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