ArticlePloS one2020
Parents' perception of their children's process of reintegration after childhood cancer treatment.
Article in PloS one, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Article
- Early Language Development in Infants and Toddlers with Hemato-Oncological Diseases: Preliminary Outcomes of a Shared Reading Intervention.Diseases (Basel, Switzerland) · 2026Article
- Implementing an eHealth Model of Care for Pediatric Patients and Families at the End of Treatment for Acute Lymphoblastic Leukemia (EMERGE): Type 2 Nonrandomized Hybrid Implementation-Effectiveness Trial Study Protocol.JMIR research protocols · 2026Article
- School Bullying of Childhood Leukemia Survivors.Psycho-oncology · 2025Article
- Addressing gaps and enhancing experiences in support services for families of pediatric cancer survivors.Pediatric research · 2025Article
- Integrative review of school integration support following pediatric cancer.Journal of cancer survivorship : research and practice · 2024Review
- Reintegration into school, kindergarten and work in families of childhood cancer survivors after a family-oriented rehabilitation program.Frontiers in pediatrics · 2024Article
- Parent-reported health-related quality of life in pediatric childhood cancer survivors and factors associated with poor health-related quality of life in aftercare.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Observational
- Development and psychometric properties of the social adjustment scale for youth cancer survivors in South Korea.Asia-Pacific journal of oncology nursing · 2023Article
- Needs Assessment in Parents of Children Affected by Cancer: A Qualitative Perspective.Children (Basel, Switzerland) · 2022Article
- The gap between expectations and reality: A qualitative study of psychosocial challenges of young childhood cancer survivors from the PACCS study.European journal of cancer care · 2022Article
- Article
- Effect of Family Nursing Intervention on Suffering Parents of Children with Cancer: A Quasi-Experimental Study.Iranian journal of nursing and midwifery researchArticle
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Authors and funding
7 authors.
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Abstract
Our objective was to further the understanding of the process of reintegration of childhood cancer patients after treatment and to identify factors influencing that process. Using a qualitative approach, we conducted 49 interviews with parents (n = 29 mothers, n = 20 fathers) from 31 families with a child (<18 years) with leukemia or CNS tumor. Interviews were conducted about 16 to 24 months after the end of the treatment. We used a semi-structured interview guideline and analyzed the data using content analysis. Average age of pediatric cancer patients was 5.5 years at the time of diagnosis; mean time since diagnosis was 3.5 years. Parents reported immediate impact of the disease on their children. Reintegration had gone along with delayed nursery/school enrollment or social challenges. In most cases reintegration was organized with a gradual increase of attendance. Due to exhaustion by obligatory activities, reintegration in leisure time activities was demanding and parents reported a gradual increase of activity level for their children. Parents described several barriers and facilitators influencing the reintegration process into nursery/school and leisure time activities (structural support, social support, health status, intrapersonal aspects). Although many children reintegrate well, the process takes lots of effort from parents and children. Childhood cancer survivors and their families should be supported after the end of intensive treatment to facilitate reintegration.
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