Evidence map›Paper›PMID 32997849›Full record

ArticleHaemophilia : the official journal of the World Federation of Hemophilia2020

Telehealth for delivery of haemophilia comprehensive care during the COVID-19 pandemic.

Mairead O'Donovan, Catherine Buckley, Julie Benson, Sheila Roche, Mark McGowan, Laura Parkinson, Patricia Byrne, Gloria Rooney, Catherine Bergin, Deirdre Walsh and 10 more

Open access · bronzeAbstract read
In one paragraph

Article in Haemophilia : the official journal of the World Federation of Hemophilia, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 1 pooled it
5.9field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 1 synthesis or guideline pooled it, 37 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Assessing the factors affecting the accessibility of primary dental care for people with haemophilia.Haemophilia : the official journal of the World Federation of Hemophilia · 2025
    Article
  4. Article
  5. Article
  6. Article
  7. The evolution of physiotherapy in the multidisciplinary management of persons with haemophilia (PWH): A scoping review.Haemophilia : the official journal of the World Federation of Hemophilia · 2023
    Article
  8. Article
  9. Review
  10. Article
  11. Article
  12. Article
  13. Article
  14. Coordinating physiotherapy care for persons with haemophilia.Haemophilia : the official journal of the World Federation of Hemophilia · 2021
    Article
  15. Article
  16. Article
  17. Care for children with haemophilia during COVID-19: Data of the PedNet study group.Haemophilia : the official journal of the World Federation of Hemophilia · 2021
    Article
  18. Telehealth for delivery of haemophilia comprehensive care during the COVID-19 pandemic.Haemophilia : the official journal of the World Federation of Hemophilia · 2020
    Article
  19. Top 50 covid and oral health articles: A 2021 altmetric analysis.Journal of oral biology and craniofacial research
    Review
  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors at 3 institutions in 1 country.

Mairead O'DonovanNational Coagulation Centre, St James's Hospital, Dublin, Ireland.ORCID https://orcid.org/0000-0001-5103-3855
Catherine BuckleyNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Julie BensonNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Sheila RocheNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Mark McGowanNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Laura ParkinsonNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Patricia ByrneNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Gloria RooneyNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Catherine BerginNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Deirdre WalshNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Rachel BirdNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Feargal McGroartyNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Helen FogartyNational Coagulation Centre, St James's Hospital, Dublin, Ireland.ORCID https://orcid.org/0000-0001-8161-7931
Elizabeth SmythNational Coagulation Centre, St James's Hospital, Dublin, Ireland.ORCID https://orcid.org/0000-0003-2358-3205
Saad AhmedNational Coagulation Centre, St James's Hospital, Dublin, Ireland.ORCID https://orcid.org/0000-0003-3389-9078
James S O'DonnellNational Coagulation Centre, St James's Hospital, Dublin, Ireland.ORCID https://orcid.org/0000-0003-0309-3313
Kevin RyanNational Coagulation Centre, St James's Hospital, Dublin, Ireland.
Brian O'MahonyIrish Haemophilia Society, Dublin, Ireland.ORCID https://orcid.org/0000-0001-9780-6972
Alison DougallNational Coagulation Centre, St James's Hospital, Dublin, Ireland.ORCID https://orcid.org/0000-0003-0543-3940
Niamh M O'ConnellNational Coagulation Centre, St James's Hospital, Dublin, Ireland.ORCID https://orcid.org/0000-0002-7005-5328
St. James's Hospital · IETrinity College Dublin · IEIrish Cancer Society · IE

Funding

Zimmerman Program on the Biology of VWDP01HL144457 · NHLBI · VERSITI WISCONSIN, INC. · PI MONTGOMERY, ROBERT R · 2019 to 2023
$13.3M
NHLBI NIH HHS P01 HL144457
6 · The paper itself

Abstract

introductionThe COVID-19 pandemic caused an unprecedented impact to haemophilia healthcare delivery. In particular, rapid implementation of telehealth solutions was required to ensure continued access to comprehensive care.

aimsTo explore patient and healthcare provider (HCP) experience of telehealth in a European Haemophilia Comprehensive Care Centre.

methodA systematic evaluation was performed to survey patient and HCP experience and compare clinical activity levels with telehealth to in-person attendances.

resultsPublic health measures implemented in March 2020 to reduce COVID-19 spread resulted in a 63% decrease in medical/nursing clinic consultation activity compared to the same period in 2019. Implementation of digital care pathways resulted in marked increase in activity (52% greater than 2019). Importantly, enhanced patient engagement was noted, with a 60% reduction in non-attendance rates. Survey of patients who had participated in medical/nursing teleconsultations demonstrated that teleconsultations improved access (79%), reduced inconvenience (82%), was easy to use (94%) and facilitated good communication with the HCP (97%). A survey exploring the telemedicine experience of HCPs, illustrated that HCPs were satisfied with teleconsultation and the majority (79%) would like to continue to offer teleconsultation as part of routine patient care. In addition to medical/nursing reviews, continued access to physiotherapy with virtual exercise classes for people with haemophilia and teleconsultation for acute dental issues was equally successful.

conclusionDuring an unprecedented public health emergency, telehealth has enabled continued access to specialized haemophilia comprehensive care. Our novel findings show that this alternative is acceptable to both patients and HCPs and offers future novel opportunities.

Indexed as

AdolescentAdultAgedAged, 80 and overComprehensive Health CareCOVID-19Delivery of Health CareFemaleHemophilia AHumansIrelandMaleMiddle AgedPandemicsSARS-CoV-2TelemedicineCOVID-19haemophiliateledentistrytelehealthtelemedicine

Identifiers

PMID32997849
PMCPMC7537516
OpenAlexW3091577702

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.