ArticlePatient education and counseling2021
Do health literacy disparities explain racial disparities in family-centered care for youths with special health care needs?
Article in Patient education and counseling, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- A health literate evaluation of a reproductive health education program for young men with sickle cell disease.Journal of communication in healthcare · 2026Article
- Examining Primary Care Utilization and Distance Traveled for Care Among Medicaid-Insured Children in South Carolina.Journal of community health · 2025Article
- Medical Complexity of Children with Special Healthcare Needs and Healthcare Experiences.Children (Basel, Switzerland) · 2024Article
- Black Children With Developmental Disabilities Receive Less Augmentative and Alternative Communication Intervention Than Their White Peers: Preliminary Evidence of Racial Disparities From a Secondary Data Analysis.American journal of speech-language pathology · 2022Article
- Exploring Health Literacy, Transition Readiness, and Healthcare Utilization in Medicaid Chronically Ill Youth.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2021Article
- Contextualizing Rural/Non-Rural Differences in Pediatric Primary Care Patterns in South Carolina: A Mixed-Methods Study.Family & community healthArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectiveTo explore the relationship among youth health literacy, parental health literacy, and family-centered care (FCC) for youth with special health care needs (YSHCN) and assess potential racial disparities.
methodsHL and FCC were assessed in 486 Medicaid-enrolled YSHCN (ages 12-18) and their healthcare-responsible parent/caregiver. Analyses assessed racial differences in HL and FCC for parents and youth using logistic regression.
resultsHalf of youth and over 80 percent of parents had adequate HL (REALM score ≥62). Adequate HL was significantly lower in African Americans (AA) for both YSHCN and parents. Only 57 % of parents and 29 % of YSHCN reported FCC. AA YSHCN reported significantly lower levels of FCC compared to White YSHCN. AA parents trended lower for FCC compared to Whites, though the disparity was not significant. AA youth and parents had significantly lower odds of reporting that doctors spent enough time with them compared to Whites.
conclusionResults suggest that AA and those with less than adequate health literacy experience lower FCC, however the relationship between race and health literacy does not explain the racial disparity in FCC. PRACTICAL IMPLICATIONS: Provider time spent focused on HL may not reduce the racial disparity in FCC, but opportunities for improvement exist.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.