Trial reportQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2021
A randomised online experimental study to compare responses to brief and extended surveys of health-related quality of life and psychosocial outcomes among women with breast cancer.
Trial report in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Methods to increase response to postal and electronic questionnaires.The Cochrane database of systematic reviews · 2023Pooled it
- Factors influencing the impact of financial toxicity on the quality of life of breast cancer patients after mastectomies.BMC cancer · 2026Article
- Patient-Reported Outcome Measures Used to Assess Surgical Interventions for Pelvic Organ Prolapse, Stress Urinary Incontinence and Mesh Complications: A Scoping Review for the Development of the APPRAISE PROM.BJOG : an international journal of obstetrics and gynaecology · 2026Article
- Validation of the Brief Assessment of Stress and Eating (BASE) in cisgender gay men and lesbian women.Journal of eating disorders · 2025Article
- Administering selected subscales of patient-reported outcome questionnaires to reduce patient burden and increase relevance: a position statement on a modular approach.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Recommendations to address respondent burden associated with patient-reported outcome assessment.Nature medicine · 2024Review
- Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection.Nature communications · 2022Review
- Crafting an effective questionnaire: An essential prerequisite of engaging surveys.Perspectives in clinical researchReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeCollecting patient-reported outcomes is important in informing the well-being of women with breast cancer. Consumer perceptions are important for successful implementation of monitoring systems, but are rarely formally assessed. We compared reactions to two different surveys (assessing psychosocial outcomes and/or Health-related Quality of Life (HrQoL) outcomes) among Australian women with breast cancer.
methodsWomen (18 + years) within 5 years diagnosis of breast cancer were randomly allocated to complete one of two online surveys: (i) minimum HrQoL measures or (ii) minimum HrQoL measures plus psychosocial outcomes (body image, depression, anxiety stress, fear of cancer recurrence, decisional difficulties and unmet need). Participants completed questions regarding their perceptions of the survey, including qualitative feedback.
resultsData were available for 171 participants (n
conclusionsAssessment of HrQoL and psychosocial outcomes was well received by consumers. Results alleviate concern regarding possible patient burden imposed by longer more in-depth surveys. The importance placed on assessment brevity should not outweigh the need to assess outcomes that consumers consider important.
Indexed as
Identifiers
32990882What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.