Evidence map›Paper›PMID 32989802›Full record

ArticleJournal of advanced nursing2020

Establishing fidelity for the creating opportunities for personal empowerment: Symptom and technology management resources (COPE-STAR) intervention.

Regena Spratling, Melissa S Faulkner, Rebecca Chambers, Patricia Lawrence, Iris Feinberg, Matthew J Hayat

Open access · greenAbstract read
In one paragraph

Article in Journal of advanced nursing, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
1.3field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Regena SpratlingSchool of Nursing, Byrdine F. Lewis College of Nursing and Health Professions, Georgia State University, Atlanta, Georgia, USA.ORCID https://orcid.org/0000-0001-9807-3280
Melissa S FaulknerLewis Distinguished Chair in Nursing, School of Nursing, Byrdine F. Lewis College of Nursing and Health Professions, Georgia State University, Atlanta, Georgia, USA.
Rebecca ChambersGeorgia State University, Atlanta, Georgia, USA.
Patricia LawrenceGeorgia State University, Atlanta, Georgia, USA.
Iris FeinbergDepartment of Learning Sciences, College of Education and Human Development, Georgia State University, Atlanta, Georgia, USA.
Matthew J HayatDepartment of Population Health Sciences, School of Public Health, Byrdine F. Lewis College of Nursing & Health Professions (Joint), Georgia State University, Atlanta, Georgia, USA.
Georgia State University · USGeorgia College & State University · US

Funding

Web-based Modules to Support Young Children Who Require Medical Technology and Their CaregiversR15NR018037 · NINR · GEORGIA STATE UNIVERSITY · PI SPRATLING, REGENA · 2018 to 2018
$423k
NINR NIH HHS 1R15NR018037-01NINR NIH HHS R15 NR018037
6 · The paper itself

Abstract

aimTo establish intervention fidelity for the Creating Opportunities for Personal Empowerment: Symptom and Technology Management Resources web-based intervention to assist caregivers of children aged 1-5 years in managing their child's symptoms and medical technology of tracheostomies and feeding tubes at home.

designDescriptive study of the strategies used to establish intervention fidelity, specifically using expert and caregiver reviewers.

methodsTo establish fidelity of the intervention, experts and caregivers were asked to evaluate the usefulness, ease of use, and acceptability of the intervention and provide any suggestions for the modules. Caregivers provided caregiver and child characteristics and were administered a health literacy measure, the Newest Vital Sign. Intervention fidelity was established from April 2019-July 2019. RESULTS/

findingsExpert and caregiver reviewers (N = 13) all agreed or strongly agreed that the intervention was useful, easy to use, and acceptable. In addition, caregiver reviewers provided care to children who required multiple technologies and a variety of care needs at home and confirmed adequate health literacy (N = 5).

conclusionThe use of expert and caregiver reviewers was very beneficial in establishing intervention fidelity. Caregivers are experts in the care of their child and provide valuable feedback based on their daily experiences at home. Experts provided evidence-based feedback. IMPACT: This nursing intervention addresses caregivers of children who require medical technology by targeting caregiver management for common symptoms, related technologies, and resources for the child and caregiver in the home setting. Intervention fidelity was established and expert and caregiver reviewers confirmed the usefulness, ease of use, and acceptability of the intervention. This study is essential to nursing, other healthcare providers, and healthcare systems in planning and implementing programmes and services for children and their caregivers and for nurse researchers establishing intervention fidelity.

trial registrationThis study is not designated as a clinical trial per NIH/NINR study and grant proposal guidelines.

Indexed as

CaregiversEmpowermentChildDelivery of Health CareFamilyHumansTechnologycaregiverschildrencomplex chronic illnessfeeding tubeintervention fidelitymedical technologynursingtechnological dependencetracheostomy

Identifiers

PMID32989802
PMCPMC7872076
OpenAlexW3089423792

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.