Evidence map›Paper›PMID 32989556›Full record

ReviewWorld journal of urology2021

Fertility and sexuality issues in congenital lifelong urology patients: female aspects.

Gunter De Win, Stéphanie Dautricourt, Rebecca Deans, Rizwan Hamid, Moneer K Hanna, Rose Khavari, Rosalia Misseri, Margaret G Mueller, Joshua Roth, Anne-Françoise Spinoit

Abstract readReview
PubMed Publisher
In one paragraph

Review in World journal of urology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
3.7field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Health-related quality of life experiences in children with bladder exstrophy-epispadias complex: a Swedish focus group study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. What has changed in pediatric neurosurgical care in spina bifida? A 30-year UAB/Children's of Alabama observational overview.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023
    Article
  9. Congenital lifelong urology.World journal of urology · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 8 institutions in 4 countries.

Gunter De Win *University of Antwerp, Faculty of Medicine and Health Science, Antwerp, Belgium. gunter.dewin@uza.be.ORCID http://orcid.org/0000-0003-3571-0339
Stéphanie Dautricourt *University of Antwerp, Faculty of Medicine and Health Science, Antwerp, Belgium.
Rebecca DeansRoyal Hospital for Women, School of Women's and Children's Health, University of New South Wales, Sydney, Australia.
Rizwan HamidRoyal National Orthopaedic Hospital Stanmore, Middlesex, UK.
Moneer K HannaNew York Presbyterian/Weill Cornell Medical Center, New York, USA.
Rose KhavariNeurourology and Transitional Urology Clinic, Houston Methodist Hospital, Houston, USA.
Rosalia MisseriPediatric Urology, Riley Hospital for Children, Indiana University Health, Indianapolis, IN, USA.
Margaret G MuellerDepartment of Obstetrics and Gynecology, Division of Female Pelvic Medicine and Reconstructive Surgery (Urogynecology), Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Joshua RothPediatric Urology, Riley Hospital for Children, Indiana University Health, Indianapolis, IN, USA.
Anne-Françoise SpinoitGhent University Hospital, Faculty of Pediatric Urology, Ghent, Belgium.
Indiana University Health · USCornell University · USMethodist Hospital · USNorthwestern University · USRoyal Hospital for Women · AURoyal London Hospital · GBUniversity College Hospital · GBUniversity of Antwerp · BE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeWith advances in treatment modalities and medical knowledge, girls with congenital urologic disorders are living well into adulthood. Although, sexual and reproductive function in this population is still poorly understood. The aim is to review existing literature about fertility and sexuality in women with congenital genitourinary disorders, including spina bifida (SB), bladder exstrophy-epispadias complex (BEEC) and congenital adrenal hyperplasia (CAH).

methodsThis review represents the joint SIU-ICUD (Société Internationale d'Urologie-International Consultation on Urological Disease) consultation on congenital lifelong urology. The results of this analysis were first presented at a joint consultation of the SIU and ICUD at the 2018 SIU annual conference in Seoul, South Korea. Appropriate experts were asked to write specific sections regarding sexuality and reproductive function in female patients with these complex congenital urogenital disorders. Each expert performed their own literature review which was reviewed by GDW, AFS, Hadley M. Wood and Dan Wood. Expert opinion was obtained where data are non-existent.

resultsOnly about half of the individuals with SB express a satisfactory sex life. In women with BEEC, cosmetic concerns surrounding genital appearance and function may increase psychological distress, including severe depression, suicide and sexual dysfunction. Professional health care is key for improving self-esteem and to interact in the biopsychosocial model of the quality of life. Patients with SB and BEEC should be informed about all the potential risks and difficulties before, during and after pregnancy. Screening for pelvic organ prolapse is important as it can exacerbate their already existing sexual dysfunction, difficulties achieving pregnancy and challenges with clean intermittent catheterization.

conclusionsLifelong multidisciplinary follow-up and management are complex but necessary. As these patients grow into their adolescence, they may have the desire to become involved in personal relationships and have sexual interactions. Their healthcare team needs to be increasingly sensitive to these aspects.

Indexed as

Adrenal Hyperplasia, CongenitalBladder ExstrophyEpispadiasFemaleHumansInfertility, FemaleMaleSexual Dysfunction, PhysiologicalSpinal DysraphismUrogenital AbnormalitiesAdolescentBladder exstrophyFertilityPelvic organ prolapseSexualitySpina bifida

Identifiers

PMID32989556
OpenAlexW3008288783

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.