ArticleJournal of health psychology2022
The centrality of disclosure decisions to the illness experience for youth with chronic conditions: A qualitative study.
Article in Journal of health psychology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
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Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Disclosing Inflammatory Bowel Disease: A Systematic Review and Meta-Synthesis Exploring the Experience of, and Barriers and Facilitators to, Self-Disclosure.Journal of clinical psychology in medical settings · 2025Pooled it
- Leaky Bodies and Everyday Disclosure and Exposure in the Neurodegenerative Illness Stories of Younger People With Parkinson's Disease.Sociology of health & illness · 2026Article
- Chronic conditions and adolescents' psychosocial wellbeing: the impact of self-reporting.European journal of pediatrics · 2025Article
- Psychosocial Distress and the Quality of Life of Cancer Patients in Rural Hospitals in Limpopo Province: A Qualitative Study.Current oncology (Toronto, Ont.) · 2025Article
- Illness conversations: Self-disclosure among children and youth with chronic illnesses.Chronic illness · 2023Review
- Illness experience and coping styles of young and middle-aged patients with sudden sensorineural hearing loss: a qualitative study.BMC health services research · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
The aim of this paper is to illuminate findings of disclosure experiences for youth living with chronic illness using a non-categorical approach. The findings were derived from a larger qualitative study framed by social constructivist grounded theory that sought to understand youth's involvement in healthcare decision-making in the context of chronic illness. Fifty-four youth participated in the study, ranging from 9 to 24 years. Three main themes representing the youth's perspectives and experiences of disclosing chronic illness were identified: (1) disclosure is central to the illness experience; (2) spectrum of disclosure; and (3) navigating others' reactions to disclosure. The findings reinforce that more emphasis on decisions related to disclosing illness in research and clinical care for youth with chronic conditions is warranted.
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Registered trials
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