ArticleThe American journal of hospice & palliative care2021
Caregiver Speaks Study Protocol: A Technologically-Mediated Storytelling Intervention for Hospice Family Caregivers of Persons Living With Dementia.
Article in The American journal of hospice & palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
7 citing papers in PubMed.
- Caregiver speaks: a randomized controlled trial of a storytelling intervention for hospice family caregivers of persons with dementia.The Gerontologist · 2026Trial
- Meaning making during bereavement as part of caregiver speaks, a narrative photo-elicitation intervention for Caregivers of persons living with dementia.Dementia (London, England) · 2026Article
- Addressing Statistical Power and Increasing Diversity in Hospice Research: Electronic Medical Record Participant Identification Compared to Nurse Referral Approaches to Recruitment.Journal of pain and symptom management · 2024Article
- "They were here, and they still matter": A qualitative study of bereaved parents legacy experiences and perceptions.Palliative medicine · 2023Article
- "Each Day We Lose a Little More": Visual Depictions of Family Caregiving for Persons with Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- Opportunities and Challenges for Visual Qualitative Intervention Research on Facebook.International journal of qualitative methodsArticle
- Using Photovoice as a Method for Capturing the Lived Experiences of Caregivers During COVID-19: A Methodological Insight.International journal of qualitative methodsArticle
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
objectiveWe present the protocol of a study aiming to examine the efficacy of a technologically-mediated storytelling intervention called Caregiver Speaks in reducing distress and grief intensity experienced by active and bereaved hospice family caregivers of persons living with dementia (PLWD).
designThe study is a mixed-method, 2-group, randomized controlled trial.
settingThis study takes place in 5 hospice agencies in the Midwest and Northeastern United States.
participantsParticipants include hospice family caregivers of PLWD.
interventionParticipants are randomized to usual hospice care or the intervention group. In the Caregiver Speaks intervention, caregivers engage in photo-elicitation storytelling (sharing photos that capture their thoughts, feelings, and reactions to caregiving and bereavement) via a privately facilitated Facebook group. This intervention will longitudinally follow caregivers from active caregiving into bereavement. The usual care group continues to receive hospice care but does not participate in the online group. OUTCOMES MEASURED: We anticipate enrolling 468 participants. Our primary outcomes of interest are participant depression and anxiety, which are measured by the Patient Health Questionnaire (PHQ-9) and the Generalized Anxiety Disorder screening (GAD-7). Our secondary outcomes of interest are participants' perceived social support, measured by the Perceived Social Support for Caregiving (PSSC) scale, and grief intensity, which is measured by the Texas Revised Inventory of Grief Present Subscale (TRIG-Present).
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.