Evidence map›Paper›PMID 32983761›Full record

ArticlePlastic and reconstructive surgery. Global open2020

Perceptions of Quality of Life among Face Transplant Recipients: A Qualitative Content Analysis.

Jason A Greenfield, Laura L Kimberly, Zoe P Berman, Elie P Ramly, Allyson R Alfonso, Olive Lee, Gustave K Diep, Eduardo D Rodriguez

Open access · goldAbstract read
In one paragraph

Article in Plastic and reconstructive surgery. Global open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
0.4field-weighted citation impact, top 40% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 5 citations in OpenAlex.

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  7. Inconvenience and adaptation in Japanese adult achondroplasia and hypochondroplasia: A cross-sectional study.Clinical pediatric endocrinology : case reports and clinical investigations : official journal of the Japanese Society for Pediatric Endocrinology · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 1 institution in 1 country.

Jason A GreenfieldHansjörg Wyss Department of Plastic Surgery, NYU Langone Health, New York, N.Y.
Laura L KimberlyDivision of Medical Ethics, Department of Population Health, NYU Langone Health, New York, N.Y.
Zoe P BermanHansjörg Wyss Department of Plastic Surgery, NYU Langone Health, New York, N.Y.
Elie P RamlyHansjörg Wyss Department of Plastic Surgery, NYU Langone Health, New York, N.Y.
Allyson R AlfonsoHansjörg Wyss Department of Plastic Surgery, NYU Langone Health, New York, N.Y.
Olive LeeHansjörg Wyss Department of Plastic Surgery, NYU Langone Health, New York, N.Y.
Gustave K DiepHansjörg Wyss Department of Plastic Surgery, NYU Langone Health, New York, N.Y.
Eduardo D RodriguezHansjörg Wyss Department of Plastic Surgery, NYU Langone Health, New York, N.Y.
NYU Langone Health · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The aim of facial transplantation (FT) was to enhance quality of life (QoL) for individuals living with severe facial disfigurement. Yet QoL has proved challenging to assess, as the field lacks a unified approach for incorporating FT recipients' perspectives into meaningful QoL measures. In this study, we review FT recipients' self-reported QoL through a qualitative analysis of publicly available posttransplant interviews to identify the aspects of QoL they report as meaningful.

methodsA conventional qualitative content analysis was conducted through a comprehensive review of publicly available interviews with FT recipients. Data sources included English language audio, video, and online print interviews from 2008 to 2019. Recipient interview data were obtained for both partial and full FT recipients located in North America through Google and YouTube searches. Audio and video interviews were transcribed, and an inductive content analysis was used to develop and apply a coding scheme to all interview transcripts. Codes were subsequently grouped into categories and interpreted into themes.

resultsIn total, 81 interviews representing 12 North American, English-speaking face transplant recipients were collected from internet sources, of which 74 interviews remained after exclusion criteria were applied. Three themes emerged representing the dimensions of QoL emphasized by FT recipients: (1) reconstitution and re-embodiment of physical/corporeal selfhood, (2) integrity of cognitive/emotional selfhood, and (3) social selfhood and the importance of social integration.

conclusionsThis study provides an insight into North American FT recipients' experiences, values, and goals and illuminates critical aspects of QoL that are meaningful to this unique patient population, which may not be fully captured by currently available assessment tools. The themes developed in this study link facets of QoL to the overall significance of embodied selfhood among FT recipients and will help inform the future development of FT-specific patient-reported QoL outcome measures.

Identifiers

PMID32983761
PMCPMC7489701
OpenAlexW3088576030

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.