Evidence map›Paper›PMID 32975747›Full record

ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2022

Amplifying Their Voices: Advice, Guidance, and Perceived Value of Cancer Biobanking Research Among an Older, Diverse Cohort.

Altovise T Ewing, Arlener D Turner, Kwame S Sakyi, Ahmed Elmi, Michele Towson, Jimmie L Slade, Adrian S Dobs, Jean G Ford, Lori H Erby

Open access · greenAbstract read
In one paragraph

Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.2field-weighted citation impact, top 40% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 8 institutions in 1 country.

Altovise T EwingGlobal Health Equity and Population Science, Roche Genentech, 1 DNA Way, South San Francisco, CA, 94404, USA. ewinga2@gene.com.ORCID 0000-0002-3936-8772
Arlener D TurnerDepartment of Psychiatry, Center for Sleep and Brain Health, New York University School of Medicine, New York, NY, USA.
Kwame S SakyiPublic and Environment Wellness Department, School of Health Sciences, Oakland University, Rochester, MI, USA.
Ahmed ElmiAll of Us Research Program, National Institutes of Health (NIH), Rockville, MD, USA.
Michele TowsonMaxwell Enterprises, 211 East Lombard Street, Baltimore, MD, #300, USA.
Jimmie L SladeCommunity Ministry of Prince George's County, P.O. Box 250, Upper Marlboro, MD, USA.
Adrian S DobsDivision of Endocrinology, Diabetes and Metabolism, The Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Jean G Ford, Ardmore, USA.
Lori H ErbyDepartment of Health Behavior, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Johns Hopkins University · USCenter for Health and Gender Equity · USCommunity Ministry of Prince George’s County · USMaxwell Technologies (United States) · USNational Institutes of Health · USNew York University · USNoble Research Institute · USOakland University · US

Funding

Training ProgramU54CA153710 · NCI · JOHNS HOPKINS UNIVERSITY · PI DOBS, ADRIAN S. · 2010 to 2015
$4.8M
A study to screen HIV+ men for ASIL and anal HPVF32CA093140 · NCI · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI WILKIN, TIMOTHY J · 2001 to 2002
$56k
Intramural NIH HHS Z99 HG999999NCI NIH HHS 5U54CA153710-04NCI NIH HHS F32 CA093140NCI NIH HHS U54 CA153710
6 · The paper itself

Abstract

The use of biobanks may accelerate scientists' chances of developing cures and treatments that are tailored to individuals' biological makeup-a function of the precision medicine movement. However, given the underrepresentation of certain populations in biobanks, the benefits of these resources may not be equitable for all groups, including older, multi-ethnic populations. The objective of this study was to better understand older, multi-ethnic populations' (1) perceptions of the value of cancer biobanking research, (2) study design preferences, and (3) guidance on ways to promote and increase participation. This study was designed using a community-based participatory research (CBPR) approach and involved eight FGDs with 67 older (65-74 years old) black and white residents from Baltimore City and Prince George's County, MD. FGDs lasted between 90 and 120 min, and participants received a $25 Target gift card for their participation. Analysis involved an inductive approach in which we went through a series of open and axial coding techniques to generate themes and subthemes. Multiple themes emerged from the FGDs for the development of future cancer-related biobanking research including (1) expectations/anticipated benefits, (2) biobanking design preferences, and (3) ways to optimize participation. Overall, most participants were willing to provide biospecimens and favored cancer-related biobank. To increase participation of older, diverse participants in biobanking protocols, researchers need to engage older, diverse persons as consultants in order to better understand the value of biobanking research to individuals from the various populations. Scientists should also incorporate suggestions from the community on garnering trust and increasing comfort with study design.

Indexed as

Biomedical ResearchNeoplasmsAgedBiological Specimen BanksCommunity-Based Participatory ResearchHumansResearch PersonnelBiobankingCancer researchCommunity-based participatory research (CBPR)Diverse population

Identifiers

PMID32975747
PMCPMC10286728
OpenAlexW3087828985

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.