Evidence map›Paper›PMID 32975471›Full record

ArticleJournal of applied gerontology : the official journal of the Southern Gerontological Society2021

Family Caregiver Perspectives on Benefits and Challenges of Caring for Older Adults With Paid Caregivers.

Amy L Shaw, Catherine A Riffin, Ariel Shalev, Harveen Kaur, Madeline R Sterling

Abstract read
In one paragraph

Article in Journal of applied gerontology : the official journal of the Southern Gerontological Society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
  4. Evolution of shared care networks by race and ethnicity: findings from the National Health and Aging Trends Study.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025
    Article
  5. When Do Paid Caregivers Support the Health of Older Adults? Geriatrician Perspectives.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
  6. Determinants of quality of life decrease in family caregivers of care-dependent patients: a longitudinal study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  7. Article
  8. Article
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  14. Rural-urban differences in family and paid caregiving utilization in the United States: Findings from the Cornell National Social Survey.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2022
    Article
  15. "I Am the Home Care Agency": The Dementia Family Caregiver Experience Managing Paid Care in the Home.International journal of environmental research and public health · 2022
    Article
  16. Article
  17. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Amy L ShawWeill Cornell Medicine, New York, NY, USA.ORCID 0000-0002-9385-1757
Catherine A RiffinWeill Cornell Medicine, New York, NY, USA.ORCID 0000-0002-2361-3083
Ariel ShalevWeill Cornell Medical College, New York, NY, USA.
Harveen KaurHackensack Meridian Health, NJ, USA.
Madeline R SterlingWeill Cornell Medicine, New York, NY, USA.

Funding

Disparities in COVID Disease Severity and Outcomes in New York CityUL1TR002384 · NCATS · WEILL MEDICAL COLL OF CORNELL UNIV · PI JULIANNE L IMPERATO-MCGINLEY · 2017 to 2026
$86.2M
Pilot CoreP30AG022845 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI Manney Carrington Reid, ELAINE WETHINGTON · 2003 to 2026
$15.2M
The Weill Cornell Medicine Research Training Program in Behavioral GeriatricsT32AG049666 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI SARA J CZAJA, Manney Carrington Reid · 2016 to 2026
$3.2M
Reid Aging and Pain Research Training ProgramK24AG053462 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI REID, MANNEY CARRINGTON · 2016 to 2025
$1.8M
Leveraging Home Health Aides to Improve Outcomes in Heart FailureK23HL150160 · NHLBI · WEILL MEDICAL COLL OF CORNELL UNIV · PI STERLING, MADELINE R · 2020 to 2024
$921k
Promoting Research Continuity and Progress toward the Development of a Novel Screening Intervention for Family Caregivers in Primary CareK01AG061275 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI RIFFIN, CATHERINE · 2019 to 2023
$680k
NCATS NIH HHS UL1 TR002384NHLBI NIH HHS K23 HL150160NIA NIH HHS K01 AG061275NIA NIH HHS K24 AG053462NIA NIH HHS P30 AG022845NIA NIH HHS T32 AG049666
6 · The paper itself

Abstract

backgroundMany older adults receive help from both family caregivers and home care workers. We aimed to understand family caregivers' perspectives on home care workers.

methodsThis qualitative study took place at an academic medical center in New York, N.Y. We interviewed family caregivers of community-dwelling older adults about their experiences with home care workers. We analyzed transcripts thematically.

resultsWe interviewed 17 family caregivers and identified four major themes: (a) home care workers provide functional and emotional support; (b) home care is logistically challenging; (c) finding the right fit between home care workers, older adults, and families is essential; and (d) home care workers and family caregivers coordinate care well beyond the initiation of home care.

conclusionDespite its logistical challenges, home care benefits patients and family caregivers. Given the growing prevalence of caregiving, clinicians and family caregivers might benefit from training and support about working with home care workers.

Indexed as

Home Care ServicesHome Health AidesAgedCaregiversFamilyHumansIndependent LivingQualitative Researchcare coordinationcaregivingfamilyhome carequalitative methods

Identifiers

PMID32975471
PMCPMC7990746

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.