Evidence map›Paper›PMID 32974678›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2021

Understanding the experiences of self-injurious behavior in autism spectrum disorder: Implications for monitoring technology design.

Kristine D Cantin-Garside, Maury A Nussbaum, Susan W White, Sunwook Kim, Chung Do Kim, Diogo M G Fortes, Rupa S Valdez

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
1.0field-weighted citation impact, top 25% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 16 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
  4. Designing for caregiving networks: a case study of primary caregivers of children with medical complexity.Journal of the American Medical Informatics Association : JAMIA · 2024
    Article
  5. Engaging the disability community in informatics research: rationales and practical steps.Journal of the American Medical Informatics Association : JAMIA · 2022
    Article
  6. Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Kristine D Cantin-GarsideDepartment of Industrial and Systems Engineering, Virginia Polytechnic Institute and State University, Blacksburg, Virginia, USA.
Maury A NussbaumDepartment of Industrial and Systems Engineering, Virginia Polytechnic Institute and State University, Blacksburg, Virginia, USA.
Susan W WhiteDepartment of Psychology, The University of Alabama, Tuscaloosa, Alabama, USA.
Sunwook KimDepartment of Industrial and Systems Engineering, Virginia Polytechnic Institute and State University, Blacksburg, Virginia, USA.
Chung Do KimDepartment of Public Health Sciences, University of Virginia, Charlottesville, Virginia, USA.
Diogo M G FortesDepartment of Public Health Sciences, University of Virginia, Charlottesville, Virginia, USA.
Rupa S ValdezDepartment of Public Health Sciences, University of Virginia, Charlottesville, Virginia, USA.
University of Virginia · USVirginia Tech · USUniversity of Alabama · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveMonitoring technology may assist in managing self-injurious behavior (SIB), a pervasive concern in autism spectrum disorder (ASD). Affiliated stakeholder perspectives should be considered to design effective and accepted SIB monitoring methods. We examined caregiver experiences to generate design guidance for SIB monitoring technology. MATERIALS AND

methodsTwenty-three educators and 16 parents of individuals with ASD and SIB completed interviews or focus groups to discuss needs related to monitoring SIB and associated technology use.

resultsQualitative content analysis of participant responses revealed 7 main themes associated with SIB and technology: triggers, emotional responses, SIB characteristics, management approaches, caregiver impact, child/student impact, and sensory/technology preferences. DISCUSSION: The derived themes indicated areas of emphasis for design at the intersection of monitoring and SIB. Systems design at this intersection should consider the range of manifestations of and management approaches for SIB. It should also attend to interactions among children with SIB, their caregivers, and the technology. Design should prioritize the transferability of physical technology and behavioral data as well as the safety, durability, and sensory implications of technology.

conclusionsThe collected stakeholder perspectives provide preliminary groundwork for an SIB monitoring system responsive to needs as articulated by caregivers. Technology design based on this groundwork should follow an iterative process that meaningfully engages caregivers and individuals with SIB in naturalistic settings.

Indexed as

CaregiversEducational PersonnelSelf-Injurious BehaviorAdolescentAdultAttitude to HealthAutism Spectrum DisorderChildConsumer Health InformaticsEvaluation Studies as TopicFemaleFocus GroupsHumansInterviews as TopicMaleYoung Adultautism spectrum disordersbehavioral monitoringcaregiversconsumer health informaticsnonsuicidal self-injuryqualitative analyses

Identifiers

PMID32974678
PMCPMC7883971
OpenAlexW3088182020

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.