Evidence map›Paper›PMID 32973921›Full record

ArticleChild and adolescent psychiatry and mental health2020

Children and young people's experiences of completing mental health and wellbeing measures for research: learning from two school-based pilot projects.

Ola Demkowicz, Emma Ashworth, Rosie Mansfield, Emily Stapley, Helena Miles, Daniel Hayes, Kim Burrell, Anna Moore, Jessica Deighton

Open access · goldAbstract read
In one paragraph

Article in Child and adolescent psychiatry and mental health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
7.9field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 34 citations in OpenAlex.

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  7. Are Adolescents Sensitive About Sensitive Data? Exploring Student Concerns About Privacy, Confidentiality, and Data Use in Health Research.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2025
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  13. Readability of Commonly Used Quality of Life Outcome Measures for Youth Self-Report.International journal of environmental research and public health · 2022
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  14. Article
  15. Monitoring and Measurement in Child and Adolescent Mental Health: It's about More than Just Symptoms.International journal of environmental research and public health · 2022
    Article
  16. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 3 institutions in 1 country.

Ola DemkowiczManchester Institute of Education, The University of Manchester, Manchester, UK.ORCID 0000-0001-9204-0912
Emma AshworthSchool of Psychology, Liverpool John Moores University, Liverpool, UK.
Rosie MansfieldManchester Institute of Education, The University of Manchester, Manchester, UK.
Emily StapleyEvidence Based Practice Unit (EBPU), University College London and the Anna Freud National Centre for Children and Families, London, UK.
Helena MilesCommon Room Consulting, London, UK.
Daniel HayesEvidence Based Practice Unit (EBPU), University College London and the Anna Freud National Centre for Children and Families, London, UK.
Kim BurrellEvidence Based Practice Unit (EBPU), University College London and the Anna Freud National Centre for Children and Families, London, UK.
Anna MooreEvidence Based Practice Unit (EBPU), University College London and the Anna Freud National Centre for Children and Families, London, UK.
Jessica DeightonEvidence Based Practice Unit (EBPU), University College London and the Anna Freud National Centre for Children and Families, London, UK.
Anna Freud Centre · GBUniversity of Manchester · GBLiverpool John Moores University · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIn recent years there has been growing interest in child and adolescent mental health and wellbeing, alongside increasing emphasis on schools as a crucial site for research and intervention. This has coincided with an increased use of self-report mental health and wellbeing measures in research with this population, including in school-based research projects. We set out to explore the way that children and young people perceive and experience completing mental health and wellbeing measures, with a specific focus on completion in a school context, in order to inform future measure and research design.

methodsWe conducted semi-structured interviews and focus groups with 133 participants aged 8-16 years following their completion of mental health and wellbeing measures as part of school-based research programmes, using thematic analysis to identify patterns of experience.

findingsWe identified six themes:

conclusionsOur findings offer greater insight into children and young people's perceptions and experiences in reporting on their mental health and wellbeing. Such understanding can be used to support more ethical and robust data collection procedures in child and adolescent mental health research, both for data quality and ethical purposes. We offer several practical recommendations for researchers, including facilitating this in a school context.

Indexed as

Child and adolescent mental healthMeasure designMeasurementMental health outcomesResearch ethicsSchool surveysSelf reportWellbeing

Identifiers

PMID32973921
PMCPMC7495852
OpenAlexW3086918979

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.