Evidence map›Paper›PMID 32969948›Full record

ArticleNursing research

Identifying Individuals With Intellectual Disability Within a Population Study.

Michelle S Franklin, Susan G Silva, Gary R Maslow, Carolyn T Halpern, Elizabeth I Merwin, Sharron L Docherty

Open access · greenAbstract read
In one paragraph

Article in Nursing research. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact, top 89% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 3 countries.

Michelle S FranklinMichelle S. Franklin, PhD, FNP-BC, PMHNP-BC, CNS, is Postdoctoral Research Associate, Duke University Duke-Margolis Center for Health Policy, Durham, North Carolina. Susan G. Silva, PhD, is Associate Research Professor, Duke University School of Nursing, Durham, North Carolina. Gary R. Maslow, MD, MPH, is Assistant Professor, Duke University School of Medicine, and Assistant Professor, Duke University School of Nursing, Durham, North Carolina. Carolyn T. Halpern, PhD, is Professor, University of North Carolina at Chapel Hill Gillings School of Global Public Health. Elizabeth I. Merwin, PhD, RN, FAAN, is Dean, The University of Texas at Arlington College of Nursing and Health Innovation. Sharron L. Docherty, PhD, PNP-BC, FAAN, is Associate Professor, Duke University School of Nursing, Durham, North Carolina.
Susan G Silva
Gary R Maslow
Carolyn T Halpern
Elizabeth I Merwin
Sharron L Docherty
University of North Carolina at Chapel Hill · US

Funding

Wave IV Data CollectionP01HD031921 · NICHD · UNIV OF NORTH CAROLINA CHAPEL HILL · PI HARRIS, KATHLEEN MULLAN · 1994 to 2020
$86.1M
Research Services CoreP2CHD050924 · NICHD · UNIV OF NORTH CAROLINA CHAPEL HILL · PI KAREN B GUZZO · 2015 to 2026
$9.6M
NICHD NIH HHS P01 HD031921NICHD NIH HHS P2C HD050924
6 · The paper itself

Abstract

backgroundMuch remains unknown about the longitudinal health and well-being of individuals with intellectual disability (ID); thus, new methods to identify those with ID within nationally representative population studies are critical for harnessing these data sets to generate new knowledge.

objectiveOur objective was to describe the development of a new method for identifying individuals with ID within large, population-level studies not targeted on ID.

methodsWe used a secondary analysis of the de-identified, restricted-use National Longitudinal Study of Adolescent to Adult Health (Add Health) database representing 20,745 adolescents to develop a method for identifying individuals who meet the criteria of ID. The three criteria of ID (intellectual functioning, adaptive functioning, and disability originating during the developmental period) were derived from the definitions of ID used by the American Psychiatric Association and the American Association on Intellectual and Developmental Disabilities. The ID Indicator was developed from the variables indicative of intellectual and adaptive functioning limitations included in the Add Health database from Waves I to III.

resultsThis method identified 441 adolescents who met criteria of ID and had sampling weights. At Wave I, the mean age of this subsample of adolescents with ID was 16.1 years. About half of the adolescents were male and from minority racial groups. Their parents were predominately female, were married, had less than a high school education, and had a median age of 41.62 years. The adolescents' mean maximum abridged Peabody Picture Vocabulary Test standardized score was 69.6, and all demonstrated at least one adaptive functioning limitation. DISCUSSION: This study demonstrates the development of a data-driven method to identify individuals with ID using commonly available data elements in nationally representative population data sets. By utilizing this method, researchers can leverage existing rich data sets holding potential for answering research questions, guiding policy, and informing interventions to improve the health of the ID population.

Indexed as

Adaptation, PsychologicalAdolescentAdultAttentionCognitionFemaleHumansIntellectual DisabilityLongitudinal StudiesMaleMental DisordersMental HealthPersons with Intellectual DisabilitiesRisk Factors

Identifiers

PMID32969948
PMCPMC7864386
OpenAlexW3088874871

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.