Evidence map›Paper›PMID 32964422›Full record

Observational studyJournal of the American Geriatrics Society2021

Do Caregiving Factors Affect Hospitalization Risk Among Disabled Older Adults?

Halima Amjad, John Mulcahy, Judith D Kasper, Julia Burgdorf, David L Roth, Ken Covinsky, Jennifer L Wolff

Registry-linked trialAbstract readObservational Study
In one paragraph

Observational study in Journal of the American Geriatrics Society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06635876 (Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency), which is not on this map. Cited by 24 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06635876 nacompletednot on this mapstarted 2025, after this paper: background citation

Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency

TypeinterventionalSponsorUniversity of California, DavisRan2025 to 2026Enrolled72ConditionsDementia, Caregiver BurdenArmsCoaching Sessions
3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. A Pilot Trial Evaluating Collaborative Healthcare Encounters With Caregivers: A Checklist-Based Intervention for Primary Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Trial
  3. Long-term effects of collaborative dementia care on quality of life and caregiver well-being.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Trial
  4. Trial
  5. Article
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  13. 2024 Alzheimer's disease facts and figures.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024
    Article
  14. Article
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  16. Article
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  19. Catalyzing dementia care through the learning health system and consumer health information technology.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023
    Article
  20. Validation of a Measure of Role Overload and Gains for End-of-Life Dementia Caregivers.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Halima AmjadDivision of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.ORCID 0000-0002-3356-1897
John MulcahyDepartment of Health Policy and Management, Johns Hopkins University Bloomberg School of Public Health, Baltimore, Maryland, USA.
Judith D KasperDepartment of Health Policy and Management, Johns Hopkins University Bloomberg School of Public Health, Baltimore, Maryland, USA.
Julia BurgdorfDepartment of Health Policy and Management, Johns Hopkins University Bloomberg School of Public Health, Baltimore, Maryland, USA.
David L RothDivision of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Ken CovinskyDivision of Geriatrics, University of California, San Francisco, San Francisco, California, USA.
Jennifer L WolffDepartment of Health Policy and Management, Johns Hopkins University Bloomberg School of Public Health, Baltimore, Maryland, USA.

Funding

The National Health and Trends StudyU01AG032947 · NIA · JOHNS HOPKINS UNIVERSITY · PI VICKI A. FREEDMAN, JENNIFER ANN SCHRACK · 2008 to 2026
$169.4M
VARC CoreP30AG044281 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Alexander Keliimoeanu Smith · 2013 to 2026
$19.9M
Unnecessary and Harmful Medication Use in Older Adults with DementiaP01AG066605 · NIA · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI Alexander Keliimoeanu Smith · 2020 to 2026
$17.7M
Caregiving for Alzheimer's Disease and Related Dementias: Enhancing the National Study of Caregiving (NSOC)R01AG054004 · NIA · JOHNS HOPKINS UNIVERSITY · PI FREEDMAN, VICKI A., WOLFF, JENNIFER L. · 2016 to 2020
$4.5M
Prognostic Significance of Family Caregiver Factors for Older Adult Health EventsR01AG047859 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2015 to 2018
$1.5M
Improving Post-Diagnosis Dementia Care in Primary CareK23AG064036 · NIA · JOHNS HOPKINS UNIVERSITY · PI AMJAD, HALIMA · 2020 to 2024
$932k
NIA NIH HHS K23 AG064036NIA NIH HHS P01 AG066605NIA NIH HHS P30 AG044281NIA NIH HHS R01 AG047859NIA NIH HHS R01 AG054004NIA NIH HHS U01 AG032947
6 · The paper itself

Abstract

BACKGROUND/

objectivesHospitalization is common among older adults with disability, many of whom receive help from a caregiver and have dementia. Our objective was to evaluate the association between caregiver factors and risk of hospitalization and whether associations differ by dementia status.

designLongitudinal observational study.

settingThe 1999 and 2004 National Long-Term Care Survey and the 2011 and 2015 National Health and Aging Trends Study, linked caregiver surveys, and Medicare claims.

participantsA total of 2,589 community-living Medicare fee-for-service beneficiaries, aged 65 years or older (mean age = 79 years; 63% women; 31% with dementia), with self-care or mobility disability and their primary family or unpaid caregiver. MEASUREMENTS: Self-reported characteristics of older adults and their caregivers were assessed from older adult and caregiver survey interviews. Older adult hospitalization over the subsequent 12 months was identified in Medicare claims. Multivariable Cox proportional hazards models adjusted for older adult characteristics and were stratified by dementia status.

resultsIn this nationally representative cohort, 38% of older adults with disabilities were hospitalized over 12 months following interview. Increased hospitalization risk was associated with having a primary caregiver who helped with healthcare tasks (adjusted hazard ratio (aHR) = 1.22; 95% confidence interval (CI) = 1.05-1.40), reported physical strain (aHR = 1.21; 95% CI = 1.04-1.42), and provided more than 40 hours of care weekly (aHR = 1.26; 95% CI = 1.04-1.54 vs ≤20 hours). Having a caregiver who had helped for 4 years or longer (vs <1 year) was associated with 38% lower risk of hospitalization (aHR = 0.62; 95% CI = 0.49-0.79). Older adults with and without dementia had similar rates of hospitalization (39.5% vs 37.3%; P = .4), and caregiving factors were similarly associated with hospitalization regardless of older adults' dementia status.

conclusionSelect caregiving characteristics are associated with hospitalization risk among older adults with disability. Hospitalization risk reduction strategies may benefit from understanding and addressing caregiving circumstances.

Indexed as

Self CareAgedCaregiversDementiaFee-for-Service PlansFemaleHospitalizationHumansIndependent LivingInsurance Claim ReviewInterviews as TopicLongitudinal StudiesMaleMedicarePersons with DisabilitiesUnited Statescaregivingdementiadisabilityhospitalization

Identifiers

PMID32964422
PMCPMC7856284

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.