ArticleBMC psychiatry2020
Lived experience research as a resource for recovery: a mixed methods study.
Article in BMC psychiatry, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
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Who cites it
22 citing papers in PubMed.
- The STORY MINE Digital Recovery Narrative Intervention for Personal Recovery in Mental Health Care: Pilot Randomized Controlled Trial.JMIR formative research · 2026Trial
- Immigration Policies as Social Determinants of Health Among International Students in the United States.Journal of immigrant and minority health · 2026Article
- Partnering with people with lived experience in eating disorder research: conceptual and practical considerations.Journal of eating disorders · 2026Article
- Young people's lived experience expertise: Insights from the DigiCAT project to develop a counterfactual analysis tool for mental health data.JCPP advances · 2026Article
- Educating during the COVID-19 Pandemic: An Educator Perspective on Mental Health.Disaster medicine and public health preparedness · 2026Article
- Leveraging lived experience in rural settings: a systematic review protocol of digital healthcare environment.BMJ open · 2025Article
- Barriers and facilitators to treatment in severe and enduring eating disorders: a mixed-methods study of access, engagement, and lived experience.Journal of eating disorders · 2025Article
- Needs and experiences of families after a sudden unexplained death in childhood: a qualitative study.BMJ paediatrics open · 2025Article
- 'Wisdom Is Knowledge Plus Experience': Qualitative Study of Lived Experience and Researcher Perspectives on Suicide Research Co-Production.International journal of mental health nursing · 2025Article
- Lived experiences and coping strategies of people living with Glaucoma in Nigeria: A qualitative study.PloS one · 2025Article
- Exploring the lived experience of receiving mental health crisis care at emergency departments, crisis phone lines and crisis care alternatives.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Lived experiences of South African rehabilitation practitioners during coronavirus disease 2019.African journal of disability · 2024Article
- Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review.Research involvement and engagement · 2023Article
- Beyond heroism: a qualitative study on the lived experiences of nurses caring for patients with COVID-19 in Pakistan.BMC nursing · 2023Article
- Patients' lived experience and reflections on long COVID: an interpretive phenomenological analysis within an integrated adult primary care psychology NHS service.Journal of patient-reported outcomes · 2023Article
- A Narrative Review of Peer-Led Positive Psychology Interventions: Current Evidence, Potential, and Future Directions.International journal of environmental research and public health · 2022Review
- Article
- Mental Health Peer Worker Perspectives on Resources Developed from Lived Experience Research Findings: A Delphi Study.International journal of environmental research and public health · 2022Article
- Revisiting Social Stigma in Non-suicidal Self-injury: A Narrative Review.Consortium psychiatricum · 2022Review
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundLived experience research is conducted by people who have experience of mental health issues and is therefore better placed than more traditional research to illuminate participants' experiences. Findings that focus on identifying enablers of recovery from a lived experience perspective have the potential to assist people in their recovery process. However, this lived experience research is often difficult to find, access and interpret. We co-produced user-friendly and engaging resources to disseminate findings from six lived experience research studies. This paper seeks to answer the research questions: a) Did exposure to lived experience research increase hopefulness for participants?; and b) How else did interacting with lived experience research resources influence participants' lives?
methodsThirty-eight participants were introduced to four resources of their choosing by peer workers over a four-week period. The helpfulness of resources was evaluated using mixed methods, including a quasi-experimental analysis of change in hope, an anonymous survey and in-depth interviews.
resultsFindings indicated that the resources promoted hope, but that increases in hopefulness may not be seen immediately. Other impacts include that the resources: encouraged helpful activities; provided a positive experience; increased valued knowledge; encouraged people to reflect on their journey and think constructively about mental health issues; helped people to feel less alone; and assisted people to explain their situation to others.
conclusionsThe research suggests the potential usefulness of lived experience research resources, presented in user-friendly formats, in the lives of people who experience mental health issues and implies a need to nurture this type of research.
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