ArticleBMC cancer2020
Identifying metrics of success for transitional care practices in childhood cancer survivorship: a qualitative interview study of survivors.
Article in BMC cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
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Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Impact of Social Determinants on Healthcare Transition Readiness Among Adolescent and Young Adult Childhood Cancer Survivors: A Mixed Methods Systematic Review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Survivorship Care After Childhood Cancer: A Systematic Review of Reported Barriers and Facilitators.Cancer control : journal of the Moffitt Cancer CenterPooled it
- Hearing screening beyond the clinic: Childhood cancer survivors' perspectives on a novel hearing screening program.BMC health services research · 2026Trial
- Transition outcomes in a diverse cohort of higher-risk young adult survivors of childhood cancer in an established care model.Journal of cancer survivorship : research and practice · 2026Article
- Determinants of transition readiness among adolescent and young adult survivors of childhood cancer: a systematic review.Journal of cancer survivorship : research and practice · 2026Review
- Access to Online Patient Portals for Adolescents With Cancer: Benefits, Concerns, and Challenges.Pediatric blood & cancer · 2026Article
- Parental and child perspectives on healthy lifestyles and artificial intelligence chatbot use among childhood and adolescent cancer survivors: a descriptive comparative study in South Korea.Child health nursing research · 2026Article
- Factors Influencing Transition Readiness in Adolescents with Systemic Lupus Erythematosus: A Qualitative Study.Patient preference and adherence · 2026Article
- Self protective health care in childhood cancer survivors from the perspective of survivors, parents, and professionals: a qualitative study.BMC health services research · 2024Article
- Health Care Transitions Among Adolescents and Young Adults With Cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2024Review
- Features of Studies on Transition Interventions for Childhood Cancer Survivors: A Scoping Review.Cancers · 2024Article
- Article
- Unveiling perspectives on the psychosocial impacts of childhood cancer survival on young adult survivors' reassimilation journey: A qualitative exploration.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2024Article
- Letting go/ moving on: A scoping review of relational effects on transition to adult care.Health care transitions · 2024Article
- Article
- Perspectives of adolescent and young adult cancer survivors: review of community-based discussion boards.Journal of cancer survivorship : research and practice · 2022Review
- Survivors of childhood cancer in Latin America: Role of foundations and peer groups in the lack of transition processes to adult long-term follow-up.Cancer reports (Hoboken, N.J.) · 2022Article
- Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative interview study of parents.Cancer medicine · 2021Article
- Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundAdolescent and young adult (AYA) childhood cancer survivors (CCS) should be empowered to continue their survivor-focused care as they transition into adult medicine. However, the majority of AYA-aged survivors become lost to follow up around the age of typical transition to adulthood. The purpose of this study was to identify, from the patient's perspective, key factors that facilitate successful transitions to adult-centered survivorship care.
methodsA qualitative study was conducted with AYA CCS (n = 29) from the survivorship clinic of a single institution as key informants. Data were collected through a series of structured phone interviews and subjected to thematic content analysis.
resultsFour major themes with multiple subthemes were identified: (1) transition practices need to be flexible and individually tailored; (2) effective communication is critical to a successful transition; (3) continuity in providers is needed during the transition; and (4) comprehensive care means care that also addresses psycho-social well-being.
conclusionsFrom the perspective of AYA CCS, the ideal model of transitional survivorship care could include a patient navigator who promotes provider flexibility, consistent communication, and pro-active comprehensive care that encompasses both medical and psycho-social well-being. Models of care for CCS should be built to provide, or seamlessly facilitate, continuous survivor-focused care across the age continuum. A longitudinal relationship with a survivor-focused provider can help promote the values that CCS' report as important in transitioning care from pediatric- to adult-centered care.
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