ArticleThe Journal of pediatrics2021
Development of a Stakeholder Driven Serious Illness Communication Program for Advance Care Planning in Children, Adolescents, and Young Adults with Serious Illness.
Article in The Journal of pediatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 1 synthesis or guideline pooled it, 58 citations in OpenAlex.
- Core Competencies for Serious Illness Conversations: An Integrative Systematic Review.Journal of palliative care · 2024Pooled it
- Effect of the Family-Centered Advance Care Planning for Teens with Cancer Intervention on Sustainability of Congruence About End-of-Life Treatment Preferences: A Randomized Clinical Trial.JAMA network open · 2022Trial
- An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial.Pediatrics · 2022Trial
- The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility.BMC pediatrics · 2022Trial
- Parental Goals of Care for Children With Rare Diseases: A Content Analysis of Pediatric Advance Care Planning Conversations.The American journal of hospice & palliative care · 2026Article
- Palliative Care and Decision for Terminal Cardiopulmonary Resuscitation in the PICU: Single-Center, Retrospective, Mixed-Methods Analysis, 2013-2022.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2026Article
- Adaptation of a Serious Illness Communication Training Intervention for the Rwandan Context.Journal of pain and symptom management · 2026Article
- Nurses' experiences of end-of-life communication with children who have life-threatening conditions in paediatric intensive care units: a qualitative descriptive study.BMC palliative care · 2026Article
- Adaptation of the serious illness conversation guide to a multicultural context in Singapore: a qualitative study.BMJ open · 2025Article
- Navigating the Healthcare System with a Complex Chronic Condition: Multidimensional Roles of Adolescents, Young Adults, and Parents.Children (Basel, Switzerland) · 2025Article
- Piloting the first pediatric-specific serious illness conversation program training at Baylor Scott & White.Proceedings (Baylor University. Medical Center) · 2025Article
- The Challenges of Advance Care Planning for Acute Care Registered Nurses.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2024Article
- Feasibility of a Serious Illness Communication Program for Pediatric Advance Care Planning.JAMA network open · 2024Article
- Translation, Adaptation, and Validation of the Swedish Serious Illness Conversation Guide.Journal of palliative care · 2024Article
- Pediatric Advance Care Planning: A Scoping Review.Children (Basel, Switzerland) · 2023Article
- Medical and End-of-Life Decision-Making Preferences in Adolescents and Young Adults with Advanced Heart Disease and Their Parents.JAMA network open · 2023Article
- Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association.Circulation. Cardiovascular quality and outcomes · 2023Review
- Article
- Views and experiences of young people, their parents/carers and healthcare professionals of the advance care planning process: A summary of the findings from a qualitative study.Palliative medicine · 2022Article
- Organizational readiness to implement the Serious Illness Care Program in hospital settings in Sweden.BMC health services research · 2022Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo develop a generalizable advance care planning (ACP) intervention for children, adolescents, and young adults with serious illness using a multistage, stakeholder-driven approach. STUDY
designWe first convened an expert panel of multidisciplinary health care providers (HCPs), researchers, and parents to delineate key ACP intervention elements. We then adapted an existing adult guide for use in pediatrics and conducted focus groups and interviews with HCPs, parents, and seriously ill adolescents and young adults to contextualize perspectives on ACP communication and our Pediatric Serious Illness Communication Program (PediSICP). Using thematic analysis, we identified guide adaptations, preferred content, and barriers for Pedi-SICP implementation. Expert panelists then reviewed, amended and finalized intervention components.
resultsStakeholders (34 HCPs, 9 parents, and 7 seriously ill adolescents and young adults) participated in focus groups and interviews. Stakeholders validated and refined the guide and PediSICP intervention and identified barriers to PediSICP implementation, including the need for HCP training, competing demands, uncertainty regarding timing, and documentation of ACP discussions.
conclusionsThe finalized PediSICP intervention includes a structured HCP and family ACP communication occasion supported by a 3-part communication tool and bolstered by focused HCP training. We also identified strategies to ameliorate implementation barriers. Future research will determine the feasibility of the PediSICP and whether it improves care alignment with patient and family goals.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.